On 29 February 2024, Rare Disease Day, the European Brain Council (EBC) brought together researchers, clinicians, people living with a rare brain disease and industry to raise awareness on rare brain diseases, their societal impact and to develop the 2024 strategic plan for the EBC rare brain disease ecosystem.
Professor Anna Jansen represented the EPNS and gave the perspective of a child neurologist during an open panel discussion ‘Rare brain disease, beyond disease unmet needs’.