The EPNS is delighted to offer FREE 1 hour to 1.5 hour long webinars on topics of key interest to Child Neurologists on the 2nd Wednesday of each month at 17:00h CET. Each webinar is broadcast live on Zoom and available for FREE to anyone who would like to register. Don’t worry if you are not available for the live broadcast however because fully paid up EPNS members will be able to access a recording of the full session via the EPNS website after the event.
Date: Wednesday 8 February 2023
Time: 17:00h Central European Time (e.g. Netherlands). Time Zone Converter: CLICK HERE
Topic: Status Dystonicus: Identification, Management and Prevention
This webinar will help you identify, manage and prevent ‘Status Dystonicus’ in children and young people.
‘Status Dystonicus’ in childhood represents the extreme and severe manifestation of dystonia and is a major medical emergency. This webinar aims to place ‘Status Dystonicus’ within a continuum of dystonia severity which is based on operationally-defined scenarios laid out in the Dystonia Severity Action Plan (DSAP) (1, 2) in which the severity of dystonia is measured according to:
Level 1: Sitting comfortably, sleeping well, metabolically stable.
Level 2: Unable to sit comfortably, but sleep pattern preserved.
Level 3: Unable to sit with sleep fragmentation.
Level 4: as for 2 and 3 with sweating and metabolic decompensation.
Level 5: Multiorgan decompensation of cardio-respiratory, renal and intravascular functions due to severe rhabdomyolysis and multi-organ failure.
The DSAP can be shared with parents, carers and teachers and health professionals as a means of identifying early dystonia deterioration and preventing further deterioration while indicating possible actions to relieve worsening dystonia and in which setting this should take place. The DSAP enables parents, carers and clinicians to understand and monitor improvements as well as deterioration in dystonia severity and provides us with a simple-to-use audit tool and teaching aid.
Speaker: Dr Jean-Pierre Lin
Chair: Dr Dewi Bakker
To register: CLICK HERE
After registering, you will receive a confirmation email containing information about joining the webinar. Registration is free and all are welcome, so please share this invitation with your colleagues! We hope you will join us.
EPNS free monthly webinars in 2023:
|08-Mar-23||Tuberous sclerosis||Anna Jansen||Dimitrios Zafeiriou|
|12-Apr-23||Neurological disorders of purine and pyrimidine metabolism||Marie-Cécile Nassogne||Ming Lim|
|10-May-23||Infantile epileptic spasms syndrome early diagnosis and management||Finbar O’Callaghan||Dana Craiu|
|14-Jun-23||Rett Syndrome||Nadia Bahi-Buisson||Ming Lim|
|13-Sep-23||Cerebral venous thrombosis – diagnosis and multidisciplinary management||Manoelle Kossorotoff||Dilek Yalnizoglu|
|11-Oct-23||to be confirmed||to be confirmed||to be confirmed|
|08-Nov-23||to be confirmed||to be confirmed||to be confirmed|
|13-Dec-23||Genetic testing: what a Paediatric Neurologist should know about choosing the right test and interpreting the results||Dana Craiu||to be confirmed|
Registration details will be uploaded one month before each webinar.
VIEW RECORDINGS OF PREVIOUS EPNS WEBINARS: CLICK HERE
Recordings of previous EPNS webinars are available to fully paid up EPNS members.
EPNS members will need their login details to access the Member Only section of the EPNS website, after selecting the ‘click here’ link above, click on ‘EPNS Webinars’ on the top menu.
If you are an EPNS Member and have any questions or you are interested in joining the EPNS, you are very welcome to email firstname.lastname@example.org