The EPNS is delighted to announce that we will be offering FREE 1 hour to 1.5 hour long webinars on topics of key interest to Child Neurologists on the 2nd Wednesday of each month at 17:00h CET.

Each webinar will be broadcast live on Zoom and available for FREE to anyone who would like to register. Don’t worry if you are not available for the live broadcast however because fully paid up EPNS members will be able to access a recording of the full session via the EPNS website after the event.

Next EPNS Webinar in the series

Date: Wednesday 14th September 2022

Time: 17:00h Central European Time (e.g. Netherlands). Time Zone Converter: CLICK HERE

Topic: Neurofibromatosis type 1; Clinical presentation and new insights


Diagnostic criteria for neurofibromatosis type 1 (NF1) have been recently revised and information on molecular testing is now included. In 10% of cases a genotype-phenotype correlation can be established and clear criteria have been established to diagnose mosaic NF1. This autosomal dominantly inherited condition (1/2500 births) results from heterozygous pathogenic variants in the NF1 gene followed by a somatic second hit in the normal copy in affected tissues. This results in an increased signalling through the MAP-kinase pathway. In 2020 FDA, and in 2021 EMA approved the use of a specific MEK-inhibitor for the treatment of plexiform neurofibromas in children. ERN-GENTURIS prepared actual surveillance and management guidelines for NF-related tumours in children and adults.

Speakers: Professor Eric Legius, Belgium
Chair: Professor Dana Craiu, Romania

To registerCLICK HERE

After registering, you will receive a confirmation email containing information about joining the webinar. Registration is free and all are welcome, so please share this invitation with your colleagues! We hope you will join us.

EPNS free monthly webinars in 2022:

Date Topic Speaker Chair
July Holiday break Holiday break Holiday break
August Holiday break Holiday break Holiday break
14-Sep-22 Neurofibromatsis type 1; Clinical presentation and new insights Eric Legius Dana Craiu
12-Oct-22 Neuropathies in Children Imelda Hughes Ming Lim
09-Nov-22 Childhood Brain Tumors and Sequalae of Treatment Coriene Catsman-Berrevoets Altynshash Jaxybayeva
14-Dec-22 Traumatic Brain Injury Rob Forsyth Kathleen Gorman

Registration details will be uploaded one month before each webinar.


Recordings of previous EPNS webinars are available to fully paid up EPNS members.

EPNS members will need their login details to access the Member Only section of the EPNS website, after selecting the ‘click here’ link above, click on ‘EPNS Webinars’ on the top menu.

If you are an EPNS Member and have any questions or you are interested in joining the EPNS, you are very welcome to email