The EPNS is delighted to offer FREE 1 hour to 1.5 hour long webinars on topics of key interest to Child Neurologists on the 2nd Wednesday of each month at 17:00h CET. Each webinar is broadcast live on Zoom and available for FREE to anyone who would like to register. Don’t worry if you are not available for the live broadcast however because fully paid up EPNS members will be able to access a recording of the full session via the EPNS website after the event.

Date: Wednesday 8 February  2023

Time: 17:00h Central European Time (e.g. Netherlands). Time Zone Converter: CLICK HERE

Topic: Status Dystonicus: Identification, Management and Prevention

Description:

This webinar will help you identify, manage and prevent ‘Status Dystonicus’ in children and young people.

‘Status Dystonicus’ in childhood represents the extreme and severe manifestation of dystonia and is a major medical emergency. This webinar aims to place ‘Status Dystonicus’ within a continuum of dystonia severity which is based on operationally-defined scenarios laid out in the Dystonia Severity Action Plan (DSAP) (1, 2) in which the severity of dystonia is measured according to:

Level 1: Sitting comfortably, sleeping well, metabolically stable.

Level 2: Unable to sit comfortably, but sleep pattern preserved.

Level 3: Unable to sit with sleep fragmentation.

Level 4: as for 2 and 3 with sweating and metabolic decompensation.

Level 5: Multiorgan decompensation of cardio-respiratory, renal and intravascular functions due to severe rhabdomyolysis and multi-organ failure.

The DSAP can be shared with parents, carers and teachers and health professionals as a means of identifying early dystonia deterioration and preventing further deterioration while indicating possible actions to relieve worsening dystonia and in which setting this should take place. The DSAP enables parents, carers and clinicians to understand and monitor improvements as well as deterioration in dystonia severity and provides us with a simple-to-use audit tool and teaching aid.

Speaker: Dr Jean-Pierre Lin
Chair: Dr Dewi Bakker

 

To registerCLICK HERE

After registering, you will receive a confirmation email containing information about joining the webinar. Registration is free and all are welcome, so please share this invitation with your colleagues! We hope you will join us.

 

EPNS free monthly webinars in 2023:

08-Mar-23 Tuberous sclerosis Anna Jansen Dimitrios Zafeiriou
12-Apr-23 Neurological disorders of purine and pyrimidine metabolism Marie-Cécile Nassogne Ming Lim
10-May-23 Infantile epileptic spasms syndrome early diagnosis and management Finbar O’Callaghan Dana Craiu
14-Jun-23 Rett Syndrome Nadia Bahi-Buisson Ming Lim
July holiday break
August holiday break
13-Sep-23 Cerebral venous thrombosis – diagnosis and  multidisciplinary management Manoelle Kossorotoff Dilek Yalnizoglu
11-Oct-23 to be confirmed to be confirmed to be confirmed
08-Nov-23 to be confirmed to be confirmed to be confirmed
13-Dec-23 Genetic testing: what a Paediatric Neurologist should know about choosing the right test and interpreting the results Dana Craiu to be confirmed

Registration details will be uploaded one month before each webinar.

VIEW RECORDINGS OF PREVIOUS EPNS WEBINARS: CLICK HERE

Recordings of previous EPNS webinars are available to fully paid up EPNS members.

EPNS members will need their login details to access the Member Only section of the EPNS website, after selecting the ‘click here’ link above, click on ‘EPNS Webinars’ on the top menu.

If you are an EPNS Member and have any questions or you are interested in joining the EPNS, you are very welcome to email info@epns.info