8th EPNS Research Meeting

Ljubljana, Slovenia

Thursday 17 (pm) and Friday 18 (am) October 2024

General information:

The EPNS has been organising Research Meetings since 2008. With an aim to enhance research in Paediatric Neurology, the meeting brings together leaders in the field, active researchers and young fellows who are interested to join or to set up research projects. It is a forum for researchers in Paediatric Neurology, where they present their work, ideas, results, creating the possibility for good interaction between researchers and premises for networking, future collaborative research in Europe and beyond. Experienced professionals and young researchers get together, in an environment where interactive, vivid discussions can take place around the presented topics.

Who is the EPNS Research Meeting aimed at?

The EPNS looks forward to welcoming Child Neurologist researchers at all stages of their career: leaders/senior colleagues, junior scientists and PhD students are all welcome and encouraged to attend.

IMPORTANT: all participants must be EPNS members who have paid their 2024 EPNS membership fee to attend this Research Meeting. If you are not a member, please email info@epns.info for more information.

To register: 

Will open in May/June 2024 when a registration link will be added to this webpage.

Number of Participants:

  • Limited to a maximum of 40 participants per working group.
  • Successful abstract presenters and successful bursary awardees will be given priority.
  • All other places will be allocated on a first come, first served basis.
  • If your preferred Working Group has been fully booked, you will have to opportunity to register to attend another Working Group.

Registration Fee:

  • 150 Euros
    • This fee covers access to the full EPNS Research Meeting programme including refreshments during lunches/breaks plus attending the ‘Get together and dinner’ with soft drinks (please note alcoholic drinks are NOT included in the registration fee and participants are welcome to purchase at their own cost from the bar)
    • This fee DOES NOT include accommodation or travel expenses.
  • Successful abstract presenters: the registration fee is ZERO.

This event is in person only.

Preliminary Programme: 

Day 1: Thursday 17 October 2024

11:00-11:30    Registration

11:30-12:00    Lunch

12:15-12:30    Welcome

12:30-13:00    Professor Dr. Jasna Križ, Canada: Deregulation of Immunity in the injured brain – novel regulatory mechanisms and targets for therapy

13:15-16:00    Band 1 Working groups 4 in parallel rooms, there will be an Epilepsy session in both bands. Participants attend ONLY ONE of the following 4:

  1. Epilepsy 1
  2. Movement Disorders
  3. Neurometabolic
  4. Paediatric Stroke

16:00-16:30    Break

16:30-19:15  Band 2 Working groups 5 in parallel rooms, there will be an Epilepsy session in both bands. Participants attend ONLY ONE of the following 5:

  1. Epilepsy 2
  2. Ataxia
  3. Autoimmune & Infectious Diseases
  4. Neonatal Neurology & Developmental Neurology
  5. Neuromuscular

Evening:  Get together and dinner.

Day 2: Friday 18 October 2024

09:00-09.30    Professor Mercuri, Italy, and Dr Jos Hendriksen, Netherlands: the BIND project: brain related comorbidities in DMD

09.30-10:00    Professor Roman Jerala, Slovenia: Development of targeted therapies for rare genetic diseases in child neurology

10:00-10:30    Break

10:30-12:30    Awards with presentations: there will be one presentation from each Working Group:

  • 2 EPNS Research Prize winners
  • 6 Best Presentation winners

12:30-13:30    Farewell Lunch

 What to expect:

  • 3 Plenary lectures
  • Attend 2 of the 8 working groups: 4 working groups will take place in parallel break-out rooms

SCROLL TO THE END OF THIS PAGE TO SEE FULL DETAILS ABOUT EACH OF THE 8 WORKING GROUPS PLUS CONTACT DETAILS FOR THE CHAIRS OF EACH GROUP.

Organising Committee:

  • Professor Barbara Plecko, Chair EPNS Scientific and Research Committee, Universitätsklinik für Kinder-und Jugendheilkunde, Graz, Austria
  • Professor Zvonka Rener Primec, University Children’s Hospital Ljubljana, Slovenia
  • Dr Jasna Oražem Mrak, University Children’s Hospital Ljubljana, Slovenia

Venue:

Cultural and Congress centre, Cankarjev Dom (in the centre of Ljubljana).

EPNS Research Prizes: 

Two prizes of 2,500 Euros per person and certificate awarded to young neurologists who present outstanding, innovative ideas in research in Paediatric Neurology.

Six Best Presentation winners will be presented a certificate.

ABSTRACT SUBMISSION: CLOSED

BURSARY APPLICATION: CLOSED

EACCME® accreditation: 

An application is in process.

 

Accommodation and Travel:   

All delegates need need to organise their own travel and accommodation.

Ljubljana is easily accessible from Jože Pučnik Airport which is 25km from the city centre.

Ljubljana has railway and bus stations located in the heart of the city and all the major hotels are centrally located.

The EPNS Research Meeting venue, Cankarjev dom – ARK 2024, is located in the city centre and walking distance from the hotels which are listed below. Delegates must book their own hotel accommodation:

 

8 WORKING GROUP invitations in DETAIL:

EPNS Working group and Description Chairs
Autoimmune and Infectious Diseases Autoimmune and Infectious Diseases working group welcomes contributions addressing all aspects of inflammatory CNS diseases, including autoimmune disorders, infectious diseases and further inflammatory processes affecting the nervous system. Primary goal of the group is to present own research projects. This may include presentations on finished and on newly planned projects. Proposals with calls for collaboration are particularly encouraged. Martin Häusler Germany) EMAIL

Sandra Bigi (Switzerland) EMAIL
Ataxia: Research in the field of the cerebellum and ataxia is growing fast over the last decade. The ataxia working group is an active group, focussing on international collaboration covering many multidisciplinary aspects of ataxia and the cerebellum. During this workshop opportunity in Lubljana in October 2024 we cordially invite you to present, participate and learn about upcoming and on-going projects. If you have a project to share or discuss, if you would like to participate in international projects, or if you are interested in the amazing cerebellum, please feel welcome to join! Deborah Sival (Netherlands) EMAIL

Maja Steinlin (Switzerland) EMAIL
Epilepsy working group is a very active formation of epilepsy researchers throughout Europe, many working in accredited centres of the European Reference Network for Rare and Complex Epilepsies, ERN EpiCARE ( https://epi-care.eu) with collaborations overseas. We have collaborated in many successful projects and studies over time. During the EPNS research meeting 2024 we aim to discuss new research proposals, interesting recent and innovative studies and ongoing (multicentre) projects. We would particularly like to give the floor to young researchers in the field to present their research ideas or results during short presentations of 10-12 minutes as well as welcome calls for collaboration with other paediatric epilepsy centres. We are also very interested to discuss identified unmet needs in paediatric epilepsy research. We ask young researchers to submit their abstracts before the end of June 2024. Even if you do not plan to present your work, we would like to encourage you as much to attend our working group meeting and participate in lively brainstorming discussions.  We look forward to receiving your contributions and to meeting you during the EPNS research meeting in Ljubljana, 2024. Alexis Arzimanoglou EMAIL

Floor Jansen (Netherlands) EMAIL

Lieven Lagae (Belgium) EMAIL
Movement Disorders Dr Jean-Pierre Lin and Prof. Michel Willemsen (Joint Chairs) for the EPNS Research Meeting in Ljubljana 18-19 October 2024, invite you to present your work on any aspect of movement disorders in children and young people. The purpose of the meeting is to allow clinical science researchers to discuss their work, which can span any aspect from the bench to the bedside, in an interactive, positive, and stimulating program and setting. We are particularly interested in clinicians, including allied health professionals, currently or recently involved in work leading to a doctoral thesis. Please contact both of us with a synopsis of your ideas and proposals for the meeting. Jean-Pierre Lin (UK) EMAIL

Michel Willemsen (Netherlands) EMAIL

 
Neonatal Neurology & Developmental Neurology: The scientific programme and discussion will cover newest research data on models of perinatal brain injury such as hypoxia and ischemia, and excitotoxic injury, as well as their effects and their contribution to clarify the pathophysiology of acquired neonatal brain injury. We will also include groups interested in brain development, including fetal neurologists and specialists of cortical malformations from basic scientist, neuro(foeto)pathologists, fetal radiologist to paediatric neurologist.

You are welcome to bring your own ideas, to inform about your own model, to get help in choosing an appropriate model for your own research questions. We would like to develop collaborative work within this group, from basic scientists to clinics. Information on neuroprotective strategies will be shared and possible joint research on fetal and perinatal brain injury will be discussed. We are looking forward to the presentation of your own ongoing research in this area. We will give you 10-15 min slots for presentation and discussion! Please submit your contribution with a title and a short summary on the topic. If you do not plan to present your work, we would like to encourage you to attend our working group to participate in lively discussions of ongoing projects

 Nadia Bahi-Buisson France) EMAIL

Regina Trollmann (Germany) EMAIL
Neurometabolics: The Neurometabolic Working Group is happy to accept research projects on diagnosis, pathomechanisms, care and treatment of paediatric neurometabolic disorders. The provided platform offers a great opportunity to establish and strengthen European research networks in the field of neurometabolic disorders in child neurology. We explicitly encourage young researchers to present projects at various stages of realisation – from application or recruitment to preliminary conclusions or final results. See you in our EPNS Research Meeting : )  Barbara Plecko (Austria) EMAIL

Dimitrios Zafeiriou (Greece) EMAIL
Neuromuscular: The Neuromuscular Working Group aims to discuss the latest research developments relevant for the diagnosis, care and treatment of paediatric neuromuscular diseases. The discussion will focus on the application of new approaches for clinical trials, implementation of novel therapies, and the European reference network for neuromuscular diseases (EURO-NMD). Further, new developments and pitfalls in genetic diagnosis, impact of standards of Care, and transition to adulthood care will be discussed. The working group session also will offer an opportunity for scientists and clinicians to present and discuss own research ideas and results.” Guenther Bernert (Austria) EMAIL

Thomas Sejersen (Sweden) EMAIL
Paediatric Stroke: We are happy to invite you to the meeting of the Paediatric Stroke Working Group in Ljubljana, 17-18 October 2024. After a keynote lecture, we will be happy to learn more about your research projects in childhood neurovascular disorders (planned or already ongoing) and to discuss possibilities for a collaborative network. Ideas for research networks sometimes appear from unsolved cases – so please bring any interesting cases and/or diagnostic/management questions to our next meeting! We are really looking forward to seeing you there! Lucia Gerstl (Germany) EMAIL

Finbar O´Callaghan (UK) EMAIL