Jean Aicardi

HONORARY MEMBER SINCE 2005 (DECEASED)

Born 1926, France
Undergraduate and postgraduate training
Faculté de Médecine de Paris, Hôpital des Enfants Malades, Hôpital Saint-Vincent de Paul, Paris and Harvard Medica School, Boston.
Major contributions to Paediatric Neurology
In several hundreds publications and a series of outstanding books Jean Aicardi has described the clinical signs and symptoms of various paediatric neurology diseases. These clinical descriptions and classifications have been seminal to further clinical and basic research in the field of paediatric neurology. “Diseases of the nervous system in childhood” has become the bible of paediatric neurology in every library. The critical attitude and the clarity of Jean Aicardi both in his writing as in his oral presentations have made him an inspirational and unique teacher in paediatric neurology.

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Peter Georg Barth

HONORARY MEMBER SINCE 2009

Born 27th October 1937, Vienna, Austria
Undergraduate and postgraduate training
Medical Degree at University of Amsterdam, completed Paediatrics at Free University Hospital Amsterdam, including a year in adult neurology. Doctoral thesis on X-linked myotubular myopathy. Paediatric neurologist at Free University Hospital, Amsterdam until 1983, and at Emma Children’s Hospital, Academic Medical Centre, University of Amsterdam until retirement in 2002.
Present appointments – Affiliation
Chair in Paediatric Neurology (officially: Inherited and congenital disorders of the nervous system) at the University of Amsterdam. Retired in 2002, but still active in research on the topics that he started to study during his official career, in cooperation with the Departments of Paediatric Neurology and Neurogenetics at the University of Amsterdam.
Major contributions to Paediatric Neurology
Peter Barth started his career in paediatric neurology as paediatrician, and since then has worked to integrate the two roots of paediatric neurology into one organization, the Dutch Paediatric Neurology Society. During his career he worked part time as neuropathologist and much of his work bears the marks of this dual approach. Major contributions were the first complete report of the X-linked mitochondrial cardioskeletal myopathy and neutropenia, later to become known as Barth syndrome and clinical and neuropathological work on pontocerebellar hypoplasia, ultimately leading to the discovery of causative TSEN-gene mutations in 2008. Important observations through cohort studies were made on patients with the Zellweger spectrum. He wrote the first review on human neuronal migration disorders in 1987 and wrote the first paper on familial microlissencephaly. He pioneered the description of Infantile fibre type dysproportion and cardiomyopathy, and a new brain malformation: pontine tegmental cap dysplasia.

Eugen BOLTHAUSER

Honorary member since 2015

Born 6th Nov. 1945, Uznach, Switzerland

Undergraduate and postgraduate training

Eugen Boltshauser graduated in medicine at the University of Zürich, where he also had most of his training in paediatrics, paediatric neurology, and neurology. 2 year postgraduate training in London, The Hospital for Sick Children

Present appointments-Affiliation

Emeritus Professor of Paediatrc Neurology and former head of department of Neuropaediatrics, Children’s Hospital Zürich. Retired 2011.

Major contributions to Pediatric Neurology

Eugen Boltshauser developed a major interest in the cerebellum. He contributed many publications on specific cerebellar malformations (in particular Joubert syndrome), cerebellar disruptions, and neuroimaging aspects of the posterior fossa. He is Editor (with J. Schmahmann) of “Cerebellar Disorders in Children”. Other topics of interest were neurofibromatosis and and neuroimaging as a diagnostic tool. He was instrumental in introducing structured teaching to trainees in paediatric neurology in Switzerland and in the “academy” of the “Society for Neuropediatrics” (GNP).

Paul Casaer

HONORARY MEMBER SINCE 2009

Born 22 Sep. 1940, Ekeren Antwerp, Belgium
Undergraduate and postgraduate training
Candidate degree faculty of medicine University of Leuven MD, faculty of medicine University of Leuven. Training in Paediatrics, Neurology, Paediatric Neurology and Rehabilitation in Leuven, Groningen (Netherland), Zurich Switzerland), PhD program and thesis Groningen.
Present appointments-Affiliation
Emeritus full Professor in Paediatrics-Paediatric Neurology. Honorary and founding director of the department of Paediatric Neurology, of the Developmental Neurology research unit and of the Paediatric Rehabilitation Centre Pulderbos. Honorary director of the Children’s Hospital of the University Hospital Leuven. Scientific advisor to the board of directors of the Marguerite Marie Delacroix foundation Brussels-Tienen (Belgium).
Major contributions to Pediatric Neurology
Training of 30 fellows in Paediatric Neurology from 15 countries. Secretary general for 4 years and president for 4 years of the ICNA-International Child Neurology Association 12 years board member of the EPNS-European Paediatric Neurology Society. 8 years president of EPNS. First elected president of the EPNS. Together with Victor Dubowitz founding editor of the EJPN journal. Research and publications, mainly related to perinatal and developmental neurology, to alternating hemiplegia and together with Jaak Jaeken the neurology of metabolic disorders.

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Victor Dubowitz

HONORARY MEMBER SINCE 2005

Born 1931, Beaufort West, South Africa
Undergraduate and postgraduate training
University of Cape Town, South Africa and the University of Sheffield, United Kingdom
Present appointments – Affiliation
Emeritus Professor of Paediatrics, University of London, Imperial College School of Medicine, Hammersmith Campus (Formerly Royal Postgraduate Medical School) Hammersmith Hospital, London. Victor Dubowitz married Lilly Dubowitz (Born Sebok). They have four sons and nine grandchildren.
Major contributions to Paediatric Neurology
Victor Dubowitz has made his major clinical and research contributions in the fields of neonatal neurology and neuromuscular disorders in children. Several hundred contributions related to these fields and other aspects of paediatric neurology and paediatrics have been published. They include a series of books written by Victor or by Victor and Lilly Dubowitz. The most classic contribution remains, in my view, the book “The Floppy Infant”. Victor Dubowitz has communicated his knowledge not only in written text but also in oral communications. There are only a few countries left in the world in which “the Dubowitz ‘s” have not given an invited or honorary lecture or contributed to seminars or workshops. Victor Dubowitz not only has excellent ideas but he also put them into practice: he did not just talk about the future of the European Federation of Paediatric Neurology Societies, he also became the first president of the new European Paediatric Neurology Society and the founding editor of the European Journal of Paediatric Neurology.

Ovar EEG-OLOFSSON

Honorary member since 2015

Born 3rd September 1932, Borås, Sweden

Undergraduate and postgraduate training

1959 M.D. University of Lund, Sweden / 1970 Ph.D. University of Göteborg, Sweden . Thesis: The development of the electroencephalogram in normal children and adolescents from the age of 1 through 21 years. / 1974 Assoc. professor and head of paediatric neurology, University of Linköping, Sweden. / Specialist competence in paediatrics, clinical neurophysiology, paediatric neurology. / 1985 Professor, especially paediatric neurology, University of Kuwait, Kuwait. / 1988 and chief physician, National Center for Epilepsy, Oslo, Norway.
1990 and head of paediatric neurology, University of Uppsala, Sweden. / 1999-2012 and consultant paediatric neurologist, University Children’s Hospital, Uppsala, Sweden, north-eastern region of  Sweden, and  from 2006 the National Center for Epilepsy, Oslo,  Norway. / Visiting professor Montreal Neurological Institute 1982-1983 and periodically 1984-1985.

Present appointments-Affiliation: Senior professor, Children’s Hospital, University of Uppsala, Sweden

Major contributions to Pediatric Neurology

Supervisor for PhD students in Uppsala (3), and Oslo (1). Co-supervisor for PhD students in Göteborg(1), and Linköping (1). / Chairman Swedish  Neuropaediatric Association 1994-1996. / Board member EPNS 1997-2005.
Board member ICNA 1998-2014 (Treasurer 2002-2014). / Member of the ILAE task force group on classification 2000-2005. / Earlier member of the editorial board of EPNS, Journal of Child Neurology, and Pediatric neurology.
Main interests: epilepsy, general paediatric neurology, clinical neurophysiology, genetics, headache, neurometabolic disorders, neuromuscular disorders. / Author of more than 130 peer reviewed papers.

Yukio Fukuyama

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1928, Japan
Undergraduate and postgraduate training
University of Tokyo
Major contributions to Paediatric Neurology
Several hundred publications and a series of books have been published by professor Fukuyama, mainly in the field epilepsy and paediatric neuromuscular disorders. It is exceptionally rare for everybody to agree that one person has had such a major impact on enhancing international collaboration in the field of paediatric neurology. Yukio Fukuyama really has built a bridge between Japanese, Asian-Ocean and European Paediatric Neurology: He has not only opened up the European and American progress in paediatric neurology to Japan but he has also opened up paediatric neurology in Japan and the Asian-Oceanic region to Europe. Many of us have enjoyed the charming hospitality of Yukio and Mrs. Fukuyama between the books and journals in their house in Tokyo.

 

 

 

 

 

 

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Ilona GYÖRGY

Honorary member since 2015

Born 1938, Verpelét, Hungary

Undergraduate and postgraduate training

Received her Medical Degree at University of Debrecen.
Training in pediatrics, neurology and pediatric neurology at University Debrecen and at Semmelweis University , Budapest.
Doctoral thesis on neonatal neurology: Budapest

Present appointments-Affiliation

Retired but still active as honorary consultant and lecturer in the Pediatric Institute of the University of Debrecen

Major contributions to Pediatric Neurology

Dr György is a leading expert in Child Neurology and indeed was one of the first pediatric neurologist in Hungary. She co-founded the Hungarian Society of Child Neurology and served as its Secretery General for 12 years and as its President 7 years. As a university professor, Dr György is also a teacher, who educated a great number of excellent doctors working as pediatric neurologists in Hungary and abroad. As member and later as president of the board of exams in Child Neurology, Dr György has created the curriculum of this post-gradual specialization in Hungary. She has published over a hundred papers, two books and numerous book chapters, mainly in Hungarian.Main interest: neonatal neurology and epilepsy. For her work as a neurologist and a teacher, Dr György has received  numerous distinctions as the life-work award of Hungarian pediatricians, Schopf-Merei award in 2003.

Neil Gordon

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1918, Edinburgh, UK
Medical training
University of Edinburgh, Scotland
Graduate and postgraduate training
In paediatrics and paediatric neurology: Edinburgh ,London, San Francisco and London
Major contributions to Paediatric Neurology
Neil Gordon was particularly important in the establishment of Paediatric Neurology in Manchester and more generally in the UK. Neil Gordon has written several hundred contributions, many relating to cortical functioning and dysfunction, for example in childhood epilepsy, and to learning and behavioural disorders. Both during scientific and clinical meetings and in his correspondence with journals, and in his superb reviews, Neil Gordon has manifested his vast knowledge of the field of paediatric neurology. In his very gentle way, both in his oral communications and in his written comments, he has successfully put great energy into improving the quality of communicated facts and interpretations in the field of paediatric neurology. The detailed attention Neil Gordon gives to his correspondence is an example to all of us.

Bengt Hagberg

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1923, Göteborg, Sweden
Undergraduate and postgraduate training
Bengt Hagberg graduated in medicine in UppsalaUniversity ; where he also trained in paediatrics and paediatric neurology.
Major contributions to Paediatric Neurology
Several hundreds of papers have been published related to the topics cerebral palsy, (e.g. “The changing panorama of cerebral palsy in Sweden”), learning difficulties, infantile hydrocephalus, polyneuropathies and other aspects of paediatrics and paediatric neurology. The careful clinical and epidemiological study of cerebral palsy allowed Bengt Hagberg to define a population of children with typical cerebral palsy and a population of children with atypical, obviously non-cerebral palsy types of developmental disorder. The study of the “non-cerebral palsy” children has been the start of a series of new diseases and disorders that were described by the Göteborg team. After the original publication by Rett, the first international publication on Rett syndrome was published by Hagberg in 1983 together with Jean Aicardi (Paris) and Karin Dias (Lisbon). This was the start of a still continuing flow of clinical and scientific progress on Rett syndrome. Bengt Hagberg built a Swedish network with P. Sourander (neuropathology), the late L. Svennerholm (neurochemistry) and A. Erlandsson (clinical genetics). The national collaboration was subsequently enlarged to an international collaboration or network with, for example Folker Hanefeld (Germany), Alan Percy (USA), O. Skiljedal (Norway) and Jean Aicardi (France).

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Colin Kennedy

HONORARY MEMBER SINCE 2019

Date and place of birth: 16th July 1952 Edinburgh, Scotland

 Undergraduate and postgraduate training: 1975 BA Hons (First Class) Philosophy, Psychology, and Physiology University of Oxford / 1978 MB BS   University of London / 1987 MD  University of London / 1987 Dual accreditation in Paediatrics and Paediatric Neurology JCHMT, RCP, London / 1978 House officer (Westminster, St Stephens Hospitals, London) / 1979 SHO Respiratory Medicine, Hammersmith Hospital, London / 1980 SHO Neurology, Natnl Hosp for Neurol. &Neurosurg., Queen Square, London / 1980 Member (then Fellow) Royal Coll. of Physicians / 1980-81.        SHO, General Paediatrics and Neonatology at Northwick Park Hospital, Harrow / 1981-2 SHO eurol.&Infectious Diseases, Great Ormond Street Children’s Hospital. / 1982-1984     MRC Research Fellow, Northwick Park Clinical Research Centre, Harrow and  Guys Hospital, London / 1984-1987Clinical Lecturer, Child Health, University of Southampton (with 2 yrs in USA) / 1985-1987 Fellow in Child Neurology, Neurology, Johns Hopkins Hospital, Baltimore, USA / 1996 Royal College of Paediatrics and Child Health Foundation Fellow.

Present appointments – Affiliation: Consultant in Paediatric Neurology, University Hospital Southampton NHS FT, UK (from 1988) / Professor in Neurology and Paediatrics, FoM, University of Southampton (from 2006)

Major contributions to Paediatric Neurology

Research: He has published about 120 peer-reviewed publications, including about 80 original reports. His studies in acute encephalitis in childhood showed that a high proportion of encephalopathies meeting carefully applied criteria for that diagnosis were of viral origin and defined age and clinical evidence of cerebral hemisphere involvement as powerful predictors of clinical outcome. He conceived and led a novel international multicentre randomized controlled drug trial that led to discontinuation of the use of diuretics for post-haemorrhagic ventricular dilatation (PHVD) in premature infants: our reports and related Cochrane review, showed that the treatment was ineffective and harmful. The trial strategy, especially with respect to outcome measurement, provided the template for the subsequent UKISS and ICISS infantile spasms treatment trials that he co-authored. He played a major role in the largest published study of pseudotumour cerebri syndrome in childhood that established its epidemiology, clinical features and associated risk factors with unprecedented precision. A treatment trial may yet follow. Around 1987, he embarked on two lines of research that constitute the majority of his subsequent research effort: First he conceived and led a unique programme of research in which a series of studies over 20 years and 20 related publications provided the bulk of the ‘high quality’ international evidence base, as assessed by the US Preventative Services Task Force (USPSTF), for Universal Newborn Hearing Screening (UNHS) for permanent childhood hearing loss (PCHL). These showed that UNHS was an effective screen and was associated with superior language and reading skills, benefits that remained demonstrable at the age of 17 years. These studies led the UK National Screening Committee and the USPSTF to change national policy in the UK and USA. Many other countries have followed suit and PCHL is now by far the commonest health condition detected by newborn screening – an unusual coincidence of paediatric neurological disorder and public health issue. Second, he led a concerted long-term effort to make measurement of quality of survival (QoS) a central feature of European treatment trials for childhood brain tumours. The challenge was to arrive at a single robust dataset of neuro-developmental outcome over a wide age range of children and young people.  This was achieved with a framework that depended on patient-reported outcomes in multiple European languages. Its creation, which took decades of discussion and consensus-building across Europe, was finally published in 2015. Its application has shown important differences between treatment regimens with respect to subsequent QoS. Families now provide these data on-line via their own laptops and tablets. Similar efforts by others in North America mean that a single dataset would now be achievable in an intercontinental paediatric neuro-oncology treatment trial. Finally, in a more recent development of this work in collaboration with Professor Grootenhuis in Leiden and others, he is leading UK efforts to use feedback of patient-reported data on quality of life to improve the outpatient NHS care of individual children after childhood brain tumours in the UK. This method will be readily applicable to children and young people with other long term neurological conditions, whether or not enrolled in a trial.

Organisation and Delivery of Clinical Care

Regionally: He was the first Paediatric Neurologist appointed to set up a Southampton-based specialist service to serve a population of 3-3.5 million in central southern England and remained its Clinical Lead for 25 years. After five years single handed, he was joined by a colleague. It was a further ten years before the service had three whole time equivalents (wte) senior medical staff. Now there are seven. Throughout that 25 years, the service was supported by nurse specialists and therapists of the highest quality and by excellent Intensive Care, Paediatric and Neuroscience specialists and supporting services. This was the centre of his professional life. He accepted particular responsibilities in neuro-oncology at the end of his training in the USA. He continues to play an active clinical role in that field and, with the support of an oncologist and a neurosurgeon, wrote the relevant section in the 2018 edition of Aicardi’s Diseases of the Nervous System in Childhood. The gradual evolution of paediatric neurorehabilitation is one area of care delivery in which his region has been ahead of the curve, thanks to the extraordinary therapists and nurses in that interdisciplinary clinical team in which he was privileged to work.

Nationally and Internationally: He has contributed in many ways to the specialty of Paediatric Neurology. In the UK, this was principally as secretary, educational lead and then president of the BPNA, the UK national specialty group. He brought some of those ideas with him to discussions in the board of the EPNS under the skillful chairmanship of Paul Casaer, its first elected president, whom Colin succeeded in that office. He was co-signatory of the Constitution of the EPNS and co-author of the European Syllabus which enshrines, among other important features, the important principle of access to the specialty from a background of either Neurology or Paediatrics. He played a major role in the creation of the Committee of National Advisors, the Training Advisory Board and the opportunities that sprang from them which have proved surprisingly powerful in bringing about positive change in the real world of providing training and health care. Disparities in the care of children neurological problems between sub-regions of Europe (as geographically defined by WHO) remain large. He continues to work to ameliorate these challenging problems with WHO. Working on this with colleagues in EPNS, EACD, Central Asia and the Caucasus continues to be a great pleasure for him. A second edition of Principles and practice of child neurology in infancy, the book that he edited and co-authored with colleagues across Europe to address this issue, is in preparation and will also become the basis of an on-line course.  This book is a useful tool in the continuing global struggle to modernise the care of children with neurological problems.  His view is that his principal contribution, overall, has been in providing clinical care as part of an exceptional interdisciplinary team.

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Gösta Mårten Killerman

HONORARY MEMBER SINCE 2009

Born Oct 2, 1941, Falun, Sweden
Undergraduate and postgraduate training
Undergraduate at Uppsala University and postgraduate at Göteborg University, Sweden.
Thesis on Dyskinetic CP 1972 and Teacher in Paediatrics 1973 at Sahlgrenska Hospital, Göteborg University.
Present appointments & Affiliation
Former Head of Child Neurology at the Children?s Hospital, Göteborg and Professor of Paediatrics. Retired in 2009.
Major contributions to Paediatric Neurology
Cerebral Palsy: aetiology, neurological profile, neuropathology.
Movement Disorders: Glutaric aciduria type I, Myoclonic Dystonia, DYT 11, clinical and genetic studies. Muscle disorders: X-linked myotubular myopaty, inclusion body myositis, dysimmune neuropathy CIDP. Epilepsy: Studies on epilepsy and mental retardation, progressive myoclonus epilepsy (Unverricht-Lundborg disease). Mental Retardation: Clinical and molecular genetic studies on male/female Rett syndrome, Angelman syndome and Angelman-like syndrome. Textbook chapters on examination/investigations in paediatric neurology, mental retardation in paediatrics, neurodificit syndromes in paediatrics, paediatric neurology, Angelman syndrome (both Swedish and English texts).

Gilles Lyon

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1921, Mulhouse, France
Undergraduate and postgraduate training
Gilles Lyon’s medical studies started in 1941 at the Medical School of the University of Paris; but were interrupted between 1943 and 1945, while he was a member of the Free French Forces in Great Britain. Training in paediatrics and neurology in La Salpétrière, Les Enfants Malades, Paris. Clinical and neuropathological training (Ray Adams and Phil Dodge), Massachussetts General Hospital Boston.
Major contributions to Paediatric Neurology
Gilles Lyon worked mainly in Paris and in Brussels. He is an excellent clinician but on top of that he has a vast experience in neuropathology and in developmental neuropathology. As a result of this unique combination of skills, he was the first to make several observations in paediatric neurology: “The free interval in congenital hemiplegia”, the role of circulatory disturbances in the development of periventricular leukomalacia. He also described, together with Philippe Evrard and Verne Caviness a series of migration disorders. He also stressed the importance of neurovirology in developmental neuropathology. Gilles Lyon wrote, together with Raymond Adams and Edwin Kolodny, a magnificent book “Neurology of Hereditary Metabolic Diseases in Children”, on the rapid expanding field of neurodegenerative and neurometabolic disorders. In Europe generally, and perhaps especially in France and Belgium, we are very grateful for his contributions as a scientist and as a teacher in paediatric neurology.

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Sanda Magureanu

HONORARY MEMBER SINCE 2009

Born: April 16th, 1938, Sibiu, Romania
Undergraduate and postgraduate training
Training in paediatrics, paediatric neurology and child psychiatry, postdoctoral fellowship in Paris, Marseille, France 1970, 1993, 1995, 1997 (under the supervision of Prof J. Aicardi, O. Dulac, M. Tardieu).
Present appointments – Affiliation
Honorary consultant, Professor of paediatric neurology, honorary member of Romanian Academy of Medical Sciences, member of scientific board of different Romanian journals, member of EPNS, EACD, ICNA, EUREPA, ILAE, Romanian Neurology Society, European Neurology Society, French League Against Epilepsy.
Major contributions to Paediatric Neurology
Sanda Magureanu is probably the most widely known paediatric neurologist in Romania. She is the creator of modern paediatric neurology in Romania as a physician, a teacher, a publisher, a researcher and also the creator of the legal frame for paediatric neurology development. Many paediatric neurologists consider her their mentor and friend. The book “Neuromuscular disorders of childhood” is an excellent reference in the field of muscular pathology for all neurologists. Her activity in childhood epilepsy field was the leading point for developing this area through the entire country.

Brian George Richard Neville

MEMBER SINCE 2009  (DECEASED)

Born February 13, 1939
Undergraduate and postgraduate training
Consultant Paediatric Neurologist and Director of the Newcomen Child Development Centre, Guy’s Hospital

Major contributions to Paediatric Neurology
Founder of European Academy of Childhood Disability and Co-founder of European Society for Movement Analysis in children. Previously Secretary and President of the British Paediatric Neurology Association. Previously training coordinator for EPNS, BPNA and North London. Main interests; epilepsy, disability and cognitive and psychiatric aspects of developmental neurology. Author of more than 200 peer reviewed papers.

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Richard Newton

MEMBER SINCE 2019

Date and place of birth: Lincolnshire, UK. 1950

Undergraduate and postgraduate training: Undergraduate at Guy’s and King’s College Hospital Medical School, London. After a General Practice Vocational Training Scheme in Hull and the East Riding of Yorkshire gaining useful experience in family medicine he completed Higher Specialist Training in Paediatric Neurology in Manchester under Dr Neil Gordon and Paris with Dr Jean Aicardi.

Present appointments – Affiliation: Honorary Consultant Neurologist, Royal Manchester Children’s Hospitals, since 1983 where he was Medical Director from 1988 to 1997.

Major contributions to Paediatric Neurology

He is a founder member and past-President of the European Association of Learning Disability Medicine (MAMH).  He was Treasurer, National Training Adviser and then President of the British Paediatric Neurology Association (BPNA) from 2001-2004. Using his managerial skills he established the BPNA Secretariat which offers the EPNS administrative support.  He was the developer of the BPNA Distance-Learning Course which has now enrolled students from 57 countries.  From 2010-2014 he was Chairman of the EPNS Education and Training Committee.  During his tenure he was able to: Finalise a speciality syllabus now accepted by the European academy of Pediatrics and Neurology Board (both responsible to the European Union of Medical specialists (UEMS);  develop an annual four-day residential Training Course to cover the syllabus on a three-year rolling programme with set learning objectives and a bursary system;  he arranged the first course in Leeds in 2006 and subsequently in Cheile Gradistei, Roumania 2009-2011 and in Sarajevo, 2011-2014. Establish the process for course host competition which selected Budapest and then Alicante as the next host sites and a template for the international peer-review Training Centre Visits. To complement the WHO inspired project Neurology in the First Year of Life courses were delivered in Tbilisi, Georgia (a forerunner of the now established biennial Caucasian course) Astana, Kazakhstan and in 2019 Uzbekistan. He is the author of over 80 peer-reviewed papers, 21 chapters and author/editor of 4 books, including the Oxford University Press Handbook in Paediatric Neurology, with a special research interest in febrile seizures, psycho-social stress in pregnancy and its relationship to adverse outcome, the immunological basis of childhood encephalopathy, headache and medical aspects of Down syndrome.

Raili Riikonen

MEMBER SINCE 2019

Date and place of birth  23.11.1941 Kuopio, Finland

Undergraduate and postgraduate training: University of Basel, Switzerland, licenciate / Fellowship of ediatrics, University of Helsinki, Finland /  Fellowship of Child Neurology, University of Helsinki / Specialist of Pediatrics, University of Helsinki / Specialist of Child Neurology, University of Helsinki / Specialist of Health Administration, University of Tampere, Finland

Present appointments – Affiliation: Senior Clinical Researcher, Children`s Hospital, University of Eastern Finland, Kuopio, Finland , Professor Emerita of Child Neurology, Children`s Hospital, Eastern University of Finland, Kuopio, Senior Clinical Researcher , Clinical consult abroad U.K. and U.S. , See also Sarnat H. “Academic activity after retirement” Neurology 2018: 91:36-40.

Major contributions to Paediatric Neurology

My major research interests: epilepsy (especially infantile spasms), nerve growth factors, autism Rett syndrome, fetal alcoholic syndrome, multiple sclerosis and stroke. I have worked as a clinician for my whole carrier. That is why I have a vast experience in clinical work. This has led me to observations on various pediatric neurology diseases which in turn have led to research and publications. .An inspirational and unique teacher, Professor Märta Donner, University of Helsinki, has played a critical role in my carrier as my mentor and friend, I have published 150 peer-reviewed papers in international journals (in most as first or last author), and a couple Finnish publications. My main contributions to the literature have been in the field of infantile spasms. I have followed personally 214 patients with infantile spasms from birth up to 50 years, with detailed clinical data including associated etiological factors, predicting factors, and treatments, co-morbidities (autism etc.). My final goal has been to find the best therapy for epilepsy and cognitive outcome. Actions of steroids at molecular basis, risk/ benefit ratio of the treatment (steroids and vigabatrin), possible mechanisms leading to pathogenesis of infantile spasms, and neuroprotection have been my further research goals. I have written 51 originals and 19 book chapters or reviewers on infantile spasms. During my last years I have concentrated to evaluate the role of nerve growth factors in different neurological disorders of childhood. I have been National Advisor of EPNS 2002-2006 (5 years), EPNS board member 2010-2018 (8 years) and ICNA board member 2002-2014 (12 years).. My teaching activity (of 40 years) is in based on my great clinical interest in child neurology: teaching for students, pediatricians and child neurologists at different levels: at public health care, central hospitals and three University hospitals: Turku, Helsinki and Kuopio (where I have acted in all hospitals as head of the department and professor of child neurology at the university).We  have received Certificate for best teaching in the Kuopio University; Pediatrics and Child Neurology. I have been the main teacher of child neurology. I have been the examinator of child neurology in whole Finland since early sixties. Teaching abroad has happened as a visiting professor at British Columbian Hospital, Vancouver for a short period, as a speaker in about 30 countries thereby enhancing communications in the field of pediatric neurology. In ICNA activity I have been in the Organizing Committee of international congresses.

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Franz J Schulte

HONORARY MEMBER SINCE 2005

Born 1930, Hagen, Germany
Undergraduate and postgraduate training
Franz Schulte went to the Medical School at the Universities of Münster, Marburg, München and Düsseldorf; in Düsseldorf he graduated with a Doctoral Thesis. He simultaneously also completed a full training in neurophysiology at the Neurophysiological Institute of the University of Göttingen (Kurt Kramer). During that period, he visited Ragnar Granit in the Nobel Institute in Stockholm. In that period Franz Schulte published a series of neurophysiological basic science papers. Franz Schulte married Frauke; they have 2 children and 4 grandchildren.
Present appointment – Affiliation
Professor Schulte is Emeritus professor and Chairman of the Department of Paediatrics at the University of Medicine in Hamburg. He also was the student Dean of the Faculty of Medicine in Hamburg for many years.
Major contributions to Paediatric Neurology
Franz Schulte was one of the first paediatric neurologists with a double training and career – in both clinical medicine and basic research. During his combined training Franz Schulte visited, for relatively short periods, several centres where new information allowed further development of understanding in paediatric neurology: these included collaboration with Alexander Minkowski and Colette Dreyfus-Brisac in Paris, Peter Tizard in London and Heinz Prechtl in Groningen. Franz Schulte stayed for a longer period with A.H. Parmelee in Los Angeles. In 1968, he published, together with Gerhard Joppich, the very first monograph on clinical neonatal neurology “Neurologie des Neugeborenen” and the following year he founded, together with K.A. Bushe, the first Journal of Paediatric Neurology in Germany “Neuropädiatrie”, that later became an international journal “Neuropediatrics”. Taking advantage of the co-location in Hamburg, of paediatrics and oncology, Franz Schulte broadened his neuropaediatric interest by developing together with the neurosurgeons an innovative paediatric neuro-oncology unit.

John B P Stephenson

HONORARY MEMBER SINCE 2015

Born 25th January 1935, Edinburgh, Scotland, UK

Undergraduate and postgraduate training

Balliol College, Oxford (BA Hons. Animal physiology; MA, BM, DM Oxon);
St Thomas’s Hospital Medical School, London (Hadden Prize: “Autoimmunity”);
Royal Hospital for Sick Children, Glasgow (Paediatrics, Paediatric Neurology); Hospital for Sick Children, Toronto (Neurosurgery, Neurology and EEG)

Present appointments-Affiliation

Honorary Professor in Paediatric Neurology, University of Glasgow;
Consultant Paediatric Neurologist Emeritus, Fraser of Allander Neurosciences Unit, Royal Hospital for Sick Children, Glasgow.

Awards

Honorary Fellowship, Royal College of Paediatrics and Child Health
Lifetime Achievement Award for Excellence in Paediatric Epilepsy. International League against Epilepsy, British Chapter. URL: http://www.recording-microphones.co.uk/ilae.htm

Marc Tardieu

Honorary member since 2015

Born 30th September 1949, Paris, France.

Undergraduate and postgraduate training

Undergraduate training at University Paris-Sud, Faculty of medicine and at Institut National de la Santé et de la Recherche medicale (INSERM).
Graduate study: successively : Hôpitaux de Paris (Internship, including training with Pr Alagille, Royer and Lapresle (adult neurology) and Hirsch (Neurosurgery)), Université Catholique de Louvain, Cliniques Universitaires St Luc (Pr Lyon and Pr Evrard), Harvard University (post-doctoral research fellow, Pr Weiner), Université Paris Sud (Pr Landrieu).

Present appointment – Affiliation

I am presently appointed by Université Paris Sud as professeur de Classe exceptionnelle (highest level) in Pediatric (neurology), in progressive retirement. I am or was part of: the International Pediatric MS study group steering committee and chair of clinical trials task force ; the International opsoclonus-myoclonus syndrome study group (presently chair). I am on editorial board of Multiple sclerosis Journal and European Journal of paediatric Neurology.
In the recent past, I was the head of pediatric neurology (Hôpitaux universitaires Paris Sud), head of Inserm Unit 1012 and head of Institut federatif de recherche Bicêtre. I was part of the board of EPNS at its onset for four years and came back to it again for a new four years term later on.

Major contributions to Paediatric Neurology

I wrote 315 articles (best as first or last author in Science, N. Engl J Med, Ann Neurol, Neurology, Brain, Lancet, Lancet Neurol, Blood, Pediatrics, Eur J Paediatr Neurol), and 40 book chapters.
My main contributions were in neuroimmunology and viral diseases of the brain. My major papers were in the fields of HIV infection of the brain of children, encephalitis in general, herpes encephalitis, multiple sclerosis, Lymphohistiocytosis, ADEM and more recently intra-cerebral gene therapy in SanFilippo disease.