When to start; when to stop.

The dilemmas of advanced medical technology in paediatric neurology


This event took place on 6-8 September 2018.

The EPNS’ Paediatric Neurology masterclasses were instituted in 2015 to address some of the dilemmas of practice in the 21st Century. Paediatric Neurology is a rapidly developing specialty: new healthcare technologies promise outcomes unthinkable a few years ago. But what is possible is not always what is appropriate. When do we start advanced treatments, or decide not to, or that the time has come to stop? Who has a say in these decisions, and how should disagreements be managed? Do attitudes to these issues differ between countries and if so what does this teach us?

We built on the unique features of first two Masterclasses, in 2015 and 2017. This small, interactive meeting senior mentoring clinician and the leaders of tomorrow shared and learned from each other’s ideas in areas where there are no easy answers. We were privileged to have speakers from a wide range of backgrounds including parents, ethicists and senior lawyers, as well as experienced clinicians.

The event was a great success where participants drew on the Cambridge tradition of rigorous, respectful, intellectual exchange across the artificial boundaries of academic disciplines.

The EPNS thanks all participants for making the masterclass such a success and extends sincere appreciation to all the invited Speakers:

Dr Ilona Autti-Ramo, Finland

Professor Richard Gilbertson, United Kingdom

Dr Rob Forsyth, United Kingdom

Dr Julika Griem, Germany

Sir Mark Hedley, United Kingdom

Dr Etienne Javouhey, France

Professor Colin Kennedy, United Kingdom

Professor Willem Lemmens, Belgium

Professor Thomas Sejersen, Sweden