High-Level Meeting on Rare Diseases

EPNS was proud to endorse the High-Level Meeting on Rare Diseases at the European Parliament in Brussels from 9–11 December 2025.https://www.brains4brain.eu/eu-activities-polices/hlm-rare/

EPNS strongly supports initiatives that promote awareness, diagnosis, and treatment of rare neurological disorders in children. We welcome this meeting as an important opportunity to engage with European policymakers and contribute to advancing the care of children with rare diseases across Europe. We are delighted that EPNS can be associated with this initiative and look forward to the outcomes of the meeting.