Disclaimer

Please note that the inclusion of the following guidelines and protocols on the EPNS website does not constitute an endorsement by the EPNS.This webpage is provided as a service by the EPNS to facilitate access to external guidelines and protocols that may be of interest to paediatric neurologists. The EPNS is not responsible for, and expressly disclaims all liability for, any reference to or reliance on the information contained within this page. Users are advised to exercise their own clinical judgment and consult the original sources as needed.

Bardet-Biedl syndrome Four European Reference Networks (ERN-EYE, ERKNet, Endo-ERN, ERN-ITHACA) have teamed up to establish a consensus statement and recommendations for Bardet-Biedl syndrome (BBS).