EPNS Board Members

Sameer Zuberi

PRESIDENT

Professor Paediatric Neurologist, Royal Hospital for Children & University of Glasgow Training:  Undergraduate: University of Edinburgh Medical School Postgaduate:   Paediatric  & Child Neurology Training in Edinburgh, Sydney & Glasgow

Fields of clinical and research interest: Epilepsy, Movement Disorders, Neurogenetics, Sleep

Memberships: EPNS (Chair Membership Committee & Board Member), BPNA, ILAE (Chair Commission on Classification &  Terminology), Editor-in-Chief European Journal of Paediatric Neurology

Banu Anlar

BOARD MEMBER

Professor of Pediatrics, Pediatric Neurologist, Hacettepe University Faculty of  Medicine

Training: Hacettepe  University Faculty of Medicine, Ankara, Turkey, University of Chicago, Department of Neurology, USA, Hacettepe University Department of Medical Biology.

Fields of clinical and research interest: Neuroimmunology: Immune-mediated diseases of the nervous system in childhood. Developmental disorders, neurocutaneous syndromes. Selected publications involved with in 2017: BIOMARKER Study Group. Prognostic relevance of MOG antibodies in children with an acquired demyelinating syndrome. Neurology. 2017 Aug 29; Turkish Pediatric Multiple Sclerosis Study Group. Characteristics of pediatric multiple sclerosis: The Turkish pediatric multiple sclerosis database. Eur J Paediatr Neurol. 2017 Jun 29. Genetic Landscape of Congenital Myasthenic Syndromes From Turkey: Novel Mutations and Clinical Insights. J Child Neurol. 2017 Jul;  Reversible Hypertensive Myelopathy-The Spinal Cord Variant of Posterior Reversible Encephalopathy Syndrome Neuropediatrics. 2017 Apr;

Memberships:The Turkish Child Neurology Society, Asian-Oceanian Child Neurology Association (AOCNA), European Pediatric Neurology Society (EPNS), International Child Neurology Association (ICNA)

Sophia Bakhtadze

BOARD MEMBER

Training: Tbilisi State Medical University, residency on paediatric neurology (2001-2004); 2004-2013 Invited lecturer in paediatric neurology at Department of Pediatric Neurology, Tbilisi State Medical University; 2013-2017 Assistant Professor of paediatric neurology, Tbilisi State Medical University; 2017-Associate professor; International League Against Epilepsy (ILAE) learning course on EEG in the diagnosis and management of epilepsy-Basic course (2011-2012);  International League Against Epilepsy (ILAE) learning course on EEG in the diagnosis and management of epilepsy-Pediatric course (2012-2013);  International League Against Epilepsy (ILAE) learning course on treatment of epilepsies (2013-2014); EPNS  1st Caucasian Training Course –Principles and Practice of Child Neurology in infancy  (2014); British Paediatric Neurology Association’s (BPNA) distance learning course on membranes, channels, epilepsy and paroxysmal disorders (2015); BPNA distance learning Course on development and Learning (2016); EPNS 2nd Caucasian Training Course (2016); BPNA distance learning course on inflammation and infection of the nervous system (2016);

Fields of clinical and research interest: Epilepsy and other paroxysmal disorders; Ketogenic diet; Behavioral disorders;

Memberships: General Secretary of Georgian Association of Child neurology and Behavioral Disorders; Member of Georgian Union of Neurologists; Member of European Association of Neurological Societies (EANS); Member of Federation of European Neuroscience Societies (FENS); Head of Section of Clinical Electrophysiology of Georgian Association of Medical Specialties

Nadia Bahi-Buisson

BOARD MEMBER

Professor , Necker Enfants Malades University hospital, Paris

Training:  Responsible for the rare disease center « Rett center ». Team Leader of the Cortical malformation Research Program at Institut Imagine-INSERM UMR-1163 Medical Training. 2009-2016, Associate Professor in Pediatric Neurology, Hopital Necker 2002- 2009 Fellow in Pediatric Neurology, Hopital Necker 1999- Pediatric specialization in Pediatrics Research Training 2011 : Accreditation to Supervise Research (HDR) 2002 : PhD Neurosciences- Neurogenetics: 1996 : Master 2: Neurosciences, Option Dévelopement

Fields of clinical and research interest: Rett Syndrome and related disorders (CDKL5, FOXG1, Pitt Hopkins) Genetics and pathophysiology in Cortical Malformatins RESEARCH GRANTS ANR-16-CE16-0011-01 DYNEINOPATHY COST OC-2016-1-20862 European Network on Brain Malformations. EraNet Neuron JTC 2015 Stem Cells Stem cells and mechanisms contributing to human cortical malformations – Fondation maladies Rares : ‘High throughput sequencing and rare diseases’

Memberships: – Member of the scientific commitee of the French Fondation Research Epilepsy and LFCE (2013- 2017), – Epileptic disorders Editorial board, 2012-present

Nina Barisic

BOARD MEMBER

Professor of Paediatrics, University of Zagreb Medical School, Head of Division for Child Neurology, Leader of Referral Centre for paediatric neuromuscular disorders, Republic of Croatia President of Croatian Child Neurology Society

Training:  Graduated Zagreb Medical School, postgraduate studies: Clinical pharmacology, Clinical Paediatrics, Trainings:Neurophysiology (EEG and EMG), British Council fellowship, Hammersmith, London, Neuromuscular unit; American Child Neurology Society Fellowship Award at Johns Hopkins and Children’s Hospital Washington, Fellowship American Austrian foundation, neurometabolic disorders, Salzburg Vienna, Fellowship Friedrich Baur and Ludwigs-Maximillians-Universitat, Genezentrum LMU in Munchen

Fields of clinical and research interest: Neuromuscular disorders, epilepsy and disorders of migration and cortical organization, EEG/EMG, Neurometabolic disorders, Neuropharmacology, Neuroimmunology

Memberships: Editorial Board of Paediatria Croatica and Neurologia Croatica, Croatian Child Neurology Society (president elected), EPNS,  CNS, CNA,  Euro Epinomics Rare Epilepsy Syndrome Consortium Local(host)President of 2011 9th EPNS Congress in Cavtat

Günther Bernert

BOARD MEMBER

Professor Kaiser Franz Josef-Hospital Vienna / Preyer Children’s Hospital, Head of Dep. Paediatrics and Adolescent Medicine

Training:  Sept. 2003“Habilitation” (Venia docendi – post-doctoral lecturing qualification) Medical University Vienna, 1992 – 1995         Training in Paeediatric Neurology, 1991  Research Fellow, Division of Paediatric Neurology (Prof. P. Casaer), Leuven, Belgium, June1989  Completion of training in Paediatrics and Adolescent Medicine, 1983-1989 Registrar: Paediatrics, Glanzing Paediatric Hospital, Vienna, Clinical visitor, University of Vienna, Dep. of Child Neuropsychiatry, 1982-1983 House officer: Hainburg Hospital, Austria

Fields of clinical and research interest: Neuromuscular Diseases, Neonatal Neurology, Neurorehabilitation , Publications: 53 peer-reviewed publications in scientific journals

Memberships: Austrian Paediatric Society (ÖGKJ), Society for Neonatology and Paediatric Intensive Care (A,G; GNPI) Society for Neuropaediatrics (A,CH,G; GNP), European Academy for Childhood Disability (EACD), European Paediatric Neurology Society (EPNS)

Francisco Carratalá-Marco

WEBMASTER

Paediatric Neurology Unit. San Juan University Hospital. Alicante, Associated Professor of Paediatrics. Miguel Hernandez University of Elche (Alicante)

Training:  Medical Degree Studies: 1975-82. Valencia and Alicante Universities Medical Faculties. Medical Licentiate Degree dissertation: “Febrile convulsions in infancy”. 10 of July 1985. Alicante University. Medical Doctor Degree thesis: “Perinatal hypoxia influence in the development of febrile convulsions”. 29 June 1989. Extraordinary Award. 1 October 1990. Alicante University. Master in Paediatrics and Infant Health. 1987-1991. Including Neuropaediatric training. Alicante University.Research Fellow in Neonatal Neurology. Leeds General Infirmary. March 1992- March 1993. Clinical Epidemiology Diploma: EVEST. Valencian Government. 1993-1994.Valencia. Paediatric General Training (MIR Spanish Training System). Neuropaediatric Training. 1995-1999. University Hospital. San Juan de Alicante. Complementary rotation in Paediatric Neurology. Sant Joan de Deu University Hospital. Barcelona, 1998.

Fields of clinical and research interest: Neonatal neurology; neurodevelopmental genetics and epidemiology. Epilepsy and autism

Memberships: ESPR 1994-2014.Spanish AEP 1995- present. SENEP Member 1995– present. (supporting my candidacy)-  Council Member 2006-2008.- President of the SENEP 2008-2010.- Ex-president council member of the SENEP 2011-13. CNA Spanish representative. 2008-13. Council member of the CNA. 2011-13. EPNS 2011- now. EPNS board Member since 2014- present. Valencian Paediatric Neurology Society 2014- present.President of the XI Mediterranean Meeting of Child Neurology. 2006 Alicante.President of the Spanish XXXII Annual SENEP meeting. 2007 Alicante.Organizing committees of: ESPR Annual meeting 1995; AEP 1995.Union of Middle Eastern and Mediterranean Paediatric Societies 2002.

Coriene Catsman-Berrevoets

CHAIR OF THE EDUCATION AND TRAINING COMMITTEE AND CHAIR CNA

Associate Professor, Head of dept of Paqediatric Neurology, Erasmus University Hospital-Sophia Children’s Hospital Rotterdam,

Training:  Pre- and postgraduate medical training, training as a (paediatric) neurologist  and PhD at the Erasmus University Hospital, Rotterdam.

Fields of clinical and research interest: Neuro-oncology, stroke, immune mediated demyelinating disease / multiple sclerosis, neurocognitive outcome of children with acquired brain injury, cerebellar cognition

Memberships: Chair of the board of National Advisors of EPNS; Chair Posterior Fossa Society

International Child Neurology Association; International Society of Pediatric Neuro-Oncology,

SIOP; World Federation of Neurology International Pediatric Multiple Sclerosis Study Group,

International Pediatric Stroke Study Group European Neurofibromatosis Society

Dana Cristina Craiu

SECRETARY

Professor of Pediatric Neurology “Carol Davila” University of Medicine Bucharest

Training:  “Carol Davila” University of Medicine, Bucharest; Paediatric Neurology training in Bucharest; subspecialisation in Neurophysiology – Bucharest and Heemstede, Netherlands; subspecialisation in Epilepsy in Bucharest and multiple International Courses. Ph.D. thesis on “Frontal epilepsies” (2004).

Fields of clinical and research interest: Main interest: epilepsy and EEG: Epilepsy Genetics (European consortium EuroEPINOMICS), cognition in epilepsy, behaviour and ASD in epilepsy, quality of life in epilepsy, etc. Othe areas: neuro-muscular disorders (“Biomarkers in Duchenne Muscle Dystrophy”), tuberous sclerosis (TOSCA study), multiple sclerosis (“Cognitive-behavioral changes in Childhood”, imaging studies); Ataxia Working Group.

Memberships: Romanian Society of Pediatric Neurology; ILAE Romania; Romanian Group for epilepsy Surgery; CEA-ILAE (Commission of European Affairs of International League against Epilepsy)

Rob Forsyth

SECRETARY

Senior Lecturer And Honorary Consultant Paediatric Neurologist, Newcastle University, Newcastle Upon Tyne

Training:  Cambridge, Oxford, Nottingham and Newcastle, UK and Vancouver, Canada

Fields of clinical and research interest: Acute neurology and coma; Neuroinflammation; neuroprotection, the epidemiology of and outcome prediction after paediatric acquired brain injury and plasticity after acquired brain injury and neurorehabilitation. I was UK National Training Adviser in paediatric neurology from 2003-2009 and Secretary of the European Committee of National [neurology training) Advisers until 2009. I lead a research group applying network neuroscience perspectives to the effects of brain injury and rehabilitation. I co-lead the EPNS Masterclass series (2015, 2017). Editor, Oxford University Press Handbook in Paediatric Neurology (3^rd edition Sept 2017)

Memberships: British Paediatric Neurology Association; Society for Research in Rehabilitation (UK); World Federation for Neurorehabilitation; International Paediatric Brain Injury Soc; EPNS

Leena Haataja

CO-OPTED CNA BOARD MEMBER 2018-2019 term

Professor of Paediatric Neurology, Children’s Hospital, Pediatric Research Center, University of Helsinki and Helsinki University Hospital, Helsinki, Finland.

Training: Research assistant, Howard Hughes Medical Institute, University of Utah Medical Center, USA (1988), Doctor of Medicine (MD), University of Turku, Finland (1991), Doctor of Medical Sciences (PhD), Medical Genetics, University of Turku (1996), Clinical Research Fellow, Hammersmith Hospital, London (1997-98), Research assistant, Visual Development Unit, University College London (1997-98), Paediatric Neurologist, University of Turku (2002), Associate professor in Paediatric Neurology, University of Turku (2004)

Fields of clinical and research interest: fetal and neonatal risk factors (e.g. prematurity, birth asphyxia, brain injuries, inflammation), protective factors (e.g. genetic mechanisms, parent-infant interaction), long-term neurodevelopmental outcome of at risk infants, developmental and neurological assessment methods, treatment guidelines, intervention studies, machine learning

Memberships: EPNS, EACD, Nordic Neuropediatric Society, Finnish Neuropediatric Society

Florian Heinen

CHAIR FINANCE COMMITTEE

Professor Ludwig-Maximilians-University Munich, University Children’s Hospital, Paediatric Neurology and Developmental Medicine

Training:  Born and School in Bonn, Rhineland

Medicine at Freiburg University, Germany

Neurology at Freiburg University, Germany

Paediatrics at Freiburg University, Germany

Subspecialty: Paediatric Neurology/ Neuropaediatrics

Fields of clinical and research interest: Migraine, Movement Disorders, Motor Development, Cerebral Palsy, Dystonia, Botulinum Toxins, Robotics, Fetal Alcohol Syndrome, Transcranial Magnetic Stimulation, Children with Medical Complexity

Memberships: EPNS, German-speaking Neuropaediatric Society (GNP), AACPDM, German Migraine and Headache Society (DMKG), German Society for Clinical Neurophysiology (DGKN), German Society for Paediatrics (DGKJ), German Society for Social Paediatrics (DGSPJ), german Society for Neurology (DGN)

Pavel Kršek

BOARD MEMBER

Professor Department of Paediatric Neurology, Charles University in Prague.

Training:  MD – 1996, 1st Medical School, Charles University in Prague, PhD – 2001, thesis “Electrophysiological, behavioral and morphological consequences of pilocarpine-induced nonconvulsive status epilepticus”, Associate professor – 2007, thesis “Diagnostics and surgical treatment of intractable epilepsy caused by focal cortical dysplasia”, Full professor – 2015, honorary lecture “Advances in localization of the epileptogenic zone in children”, 58 articles (ISI Web of Knowledge), 774 citations, 12 book chapters, h-factor 15, 2008 Marcus Marci Prize for the best publication in epileptology, 2010 Czech Minister of Health Prize for the best grant project, 22 grant projects, principal investigator in 10, 2 international and 1 FP7 project, 2001 Department of Clinical Neurophysiology, Heemstede, The Netherlands, 2005 Neuropediatric Clinic and Clinic for Neurorehabilitation, Vogtareuth, Germany, 2006-2007, 2010 and 2012 Brain Institute, Miami Children’s Hospital, USA, 2015 Department of Neurology, Great Ormond Street Hospital, London, UK

Fields of clinical and research interest: Pediatric epilepsy – surgical treatment, epileptic encephalopathy, cortical malformations, intracranial EEG analyzes, cortical mapping, etc. Neurodevelopmental disorders – connectome in specific language impairment

Memberships: Czech Society of Paediatric Neurology – scientific secretary from 2011, head of society from 2016, EPNS – member of CNA, Czech League Against Epilepsy – treasurer from 2015 International League Against Epilepsy – Commission on Surgical Therapies (2013-2017), Commission on Diagnostic Methods (2013-2017), Czech Neurophysiological Society – Commission on Electroencephalography from 2014

Tally Lerman-Sagie

BOARD MEMBER

Professor Sackler School of Medicine, Tel-Aviv University & Pediatric Neurology Unit, Wolfson Medical Center, Holon Training:  Medical degree, Hadassah-Hebrew University Medical School, Jerusalem, 1984. Residency in Pediatrics, Beilinson Medical Center, Petah-Tiqva, board certified in Pediatrics in 1990. Fellowship in Pediatric Neurology at Mass. General Hospital, Boston, MA. Fellowship in Metabolism at Children’s Hospital, Boston, MA. Israeli Board certified in Pediatric Neurology and Child Development

Fields of clinical and research interest: Professor of Pediatrics and Pediatric Neurology at Sackler School of Medicine, Tel-Aviv University. Chief of Pediatric Neurology at Wolfson Medical Center, Israel. Head of the Metabolic-Neuro-Genetic Service which diagnoses and treats rare metabolic and neurogenetic disorders. Neurologic co-director of the Fetal Neurology Clinic, a multidisciplinary clinic that diagnoses and counsels pregnant women with fetal brain anomalies. Main research is in the diagnosis of brain anomalies in utero and postnatal implications and the genetic basis of rare neurogenetic and epilepsy syndromes. Published over 250 papers and written chapters in books on fetal neurology, including the chapter on Prenatal Diagnosis of Structural Brain Anomalies, in Swaiman’s Pediatric Neurology: Principles and Practice, 5th and 6th Editions.

Memberships: EPNS, ILAE, Israeli League Against Epilepsy, Israeli Pediatric Neurology Society, IsraeliSociety for Inborn Errors of Metabolism, Member of the Editorial Board of EJPN, JCN and Harefua, Associate Editor of JCN on Fetal Neurology,

Lieven Lagae

PAST PRESIDENT

Professor University Hospitals KULeuven, Leuven Belgium

Training:  MD and Paediatrics, Leuven 1986-1990

PhD Neuroscience 1993

Paediatric Neurology, Leuven and Boston, 1995

Board Certification Clinical Neurophysiology, Boston, 1996

Fields of clinical and research interest: Paediatric Neurology, Epilepsy, Cognitive Neuroscience

Memberships EPNS, AES, EAN, ICNA

Jean-Pierre Lin

BOARD MEMBER

Complex Motor Disorders Service, Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust & King’s Health Partners, London

Training:  Jean-Pierre Lin MB ChB, MRCP(UK), PhD, FRCPCH, qualified in medicine,1983, Edinburgh University. Trained in adult medicine, neurology, paediatrics, Obtained an Edinburgh University George Guthrie Research Fellowship 1990-4 leading to a PhD in ‘Motor Assessments in Cerebral Palsy’ supervised by E Geoffrey Walsh and J Keith Brown. Posts include Senior Registrar in Paediatric Neurology, Great Ormond Street Hospital for Children, Gait Laboratory Fellow 1996, Consultant Paediatric Neurologist, Guy’s & St Thomas’ NHS Foundation Trust 1997-present. Director GSTT Gait Lab: 1997-99 Clinical Lead Complex Motor Disorders Service: 2006-present.

Fields of clinical and research interest: Developmental Neuroplasticity, Movement Disorders (CP), neuromodulation (DBS). Neuroinflammation, rICP. Publications: https://www.ncbi.nlm.nih.gov/pubmed/?term=jean-pierre+lin

Memberships: President: British Paediatric Neurology Association, Chair: BPNA Movement Disorders Clinical Research Network, Board Member Scientific and Membership Committees: EPNS, The Physiology Society, Member of the Medical & Scientific Advisory Board of Dystonia Europe and presentation in EU Parliament: https://dystonia-europe.org/2017/01/envi-publication-living-neurological-brain-disorder-taking-control-life/ http://www.europarl.europa.eu/RegData/etudes/STUD/2016/595331/IPOL_STU(2016)595331_EN.pdf

Finbar O’Callaghan

CHAIR OF THE MEMBERSHIP, PR & WEBSITE COMMITTEE

Professor of Paediatric Neuroscience, UCL Great Ormond Street Hospital Institute of Child Health and Hon. Consultant in Paediatric Neurology at Great Ormond Street Hospital, London, UK.

Training:  Medical Degree: University of Bristol 1990. MSc in Epidemiology: University of London. PhD in Clinical Epidemiology: University of Bath. Paediatric & Paediatric Neurology training: Bristol, Bath, Birmingham, Toronto, Southampton. Epidemiology training: London School of Hygiene and Tropical Medicine, MRC Epidemiology Unit, Southampton, and National Perinatal Epidemiology Unit, University of Oxford

Fields of clinical and research interest: Infantile epilepsy (Chief Investigator of ICISS trial in infantile spasms), Tuberous sclerosis Complex (Lead TS Clinics at Great Ormond Street, London and Royal United Hospital, Bath. Member of TOSCA Scientific Advisory Board. UK Chief Investigator of EXIST-1 and EXIST-3 studies), Childhood Stroke (Chief Investigator of Study of Outcome of Childhood Stroke (SOCS) and member of executive of International Paediatric Stroke Study (IPSS) Neuroepidemiology

Memberships: Secretary and Board Member of EPNS (2014-2018), President-Elect of British Paediatric Neurology Association (BPNA), Co-Chair of 14^th EPNS Congress, Glasgow 2021. Chair of BPNA Distance Learning Course 2011-2016, Associate Editor of European Journal of Paediatric Neurology, Member of ILAE and American Epilepsy Society

Alasdair Parker

CO-OPTED CNA BOARD MEMBER 

Dr Alasdair Parker trained in paediatric neurology in London and is now a consultant paediatric neurologist at Addenbrooke’s Hospital, Cambridge, where he leads the East of England Paediatric Neurology Service.

He has launched/led regional video-telemetry, movement disorder, neuromuscular, acute brain injury, ketogenic diet, vagal nerve stimulation and neuro-immunology services. He continues to have a great interest in the epilepsies, tuberous sclerosis, microcephaly, movement disorders and efficient investigation of children presenting with neurological disorders.

His main research interests include the identification of genetic disorders in children with neurological disease, microcephaly, and the intractable epilepsies.

He holds an associate lectureship at the University of Cambridge, leading in the training of under-graduates, junior and senior doctors within paediatric neurology. He was inaugural Chair of the BPNA education committee and National Training Advisor in Paediatric Neurology 2013 onwards.

Barbara Plecko

CHAIR OF THE SCIENTIFIC AND RESEARCH COMMITTEE

Professor General Pediatrics, Medical University of Graz, Auenbruggerplatz 34/2; 8036 Graz

Training:  Residency in General Pediatrics and Fellowship in Child Neurology at the Medical University of Graz

Fields of clinical and research interest: Neurometabolic disorders

Memberships: EPNS, SSIEM, GNP, APS, ÖGKJ

Zvonka Rener Primec

BOARD MEMBER

Consultant in Paediatric Neurology, Associated Professor in Paediatrics, Univ. Children Hospital Ljubljana, Chair of Paediatrics, Medical faculty University Ljubljana.

 Medical education: Medical faculty University Ljubljana,

Training paediatrics and child neurology at the Univ. Pediatric Hospital Ljubljana, electro-encephalography Clinical Institute of neurophysiology Medical centre Ljubljana, clinical epileptology with dr. Charlotte Dravet and dr. Michelle Bureau in the Centre St. Paul, Marseille and dr.Hans Holthausen in Vogtareuth, Germany; EEG school dr.Annette Beaumanoir, France; Paroxysmal disorders in early childhood with prof.dr. Stephenson, Glasgow; Philadelphia seminars in Child and Developmental neurology, Salzburg; Venice Neurological School on epilepsy surgery, Cleveland Clinic-Bielefeld Seminars, VIREPA distant learning courses.

Fields of interest and clinical research: epilepsy, non-epileptic paroxysmal disorders, stroke, headache, neuro-imunology.

Memberships: Slovene Medical Association, Medical Chamber of Slovenia, Pediatric and Child Neurology section, Section for neurophysiology, Section for Neurology, Section for Epilepsy of Slovene chapter of ILAE member and secretary  4 years) (League against Epilepsy).

International memberships: EPNS since 1999, French chapter of ILAE since 1993, International Child Neurology Association-ICNA since 2006, member of Editorial board of European Journal of Paediatric Neurology

Kevin Rostasy

BOARD MEMBER

Professor, Head of Pediatric Neurology, Witten/Herdecke University, Children’s Hospital Datteln

Training:  2014- Head of Pediatric Neurology, Children’ Hospital Datteln, University Witten/Herdecke, Germany, 2007-2014 Head of Pediatric Neurology, Medical University Innsbruck, Austria),
2001-2007 Pediatric Neurologist, Department of Pediatrics, Medical University, Göttingen, Germany, 2006 Habilitation/PhD, Medical University Göttingen, „Inflammation and neuroaxonal injury in MS and AIDS dementia complex”. 1999-2001 NIH Research Fellow “Molecular and cellular mechanisms of cerebral injury in the AIDS”
, 1996-1999 Neuropediatric Residency Program (Floating Hospital for Children, Boston, USA), 1991-1996 MRCP I/II (Member Royal College of Physicians): Edinburgh, Scotland and Senior- and Supervisory-Senior-House-Officer/ Royal Aberdeen Children’s Hospital, Scotland.

Fields of clinical and research interest: Neuroimmunology (MOG-Spectrums Diseases, MS, OMS)

Memberships: EPNS and Head of EPNS Research Group Neuroinflammatory Diseases;
German Society of Neuropediatrics (GNP), Board Member 2012-2015 International Pediatric Multiple Sclerosis Study Group (IPMSSG), Member of the Steering committee.

Thomas Sejersen

BOARD MEMBER

Professor and senior lecturer, Astrid Lindgrens Children’s Hospital, Karolinska Hospital and Karolinska Institutet

Training:  PhD, 1987, Medical school, 1988; MD, 1990, Docent in Medical cell genetics 1991, Specialist in Paediatrics. 1998, Specialist in Paediatric neurology and habilitation, 1999, Professor in Pediatric Neurology 2009

Fields of clinical and research interest: Neuromuscular disorders

Memberships: Chairman of Swedish research council network on muscle disorders 2000-2003. Board member and scientific secretary Swedish paediatic neurology society 2001-2005. Board member of Scientific committee of RBU (National Association for Disabled Children and Adolescents), 2006-2016. Member of Stockholm ethics review board for medical research, 2006-2016.Activity leader for standards of diagnosis and care, executive committee member in international network for neuromuscular disorders, TREAT-NMD, 2007- Invited DuchenneConnect Advisor, 2008-. Member of governing board for EU-project on development of high throughput genetic diagnosis of neuromuscular disorders, NMD-CHIP, 2008-2011. Work package leader and member of governing board for EU-project to develop best practice guidelines for rare diseases, RARE-BESTPRACTICES, 2012-2016. Member of European Reference Network for neuromuscular disorders EURO-NMD.

Maja Steinlin

BOARD MEMBER

Professor, Head of Division Neuropaediatrics,Rehabilitation, Development & Codirector of University Neurocenter Inselspital, University Bern

Training:  General Surgery Walenstadt, Internal Medicine in Schaffhausen, Paediatrics in Chur (D. Vischer) and Zuerich (A. Fanconi), Switzerland; Paediatric Neurology in Zuerich (E. Boltshauser) and Bern (Ch. Hess, Adult Neurology) Switzerland and Toronto (B. Logan) Canada

Fields of clinical and research interest: Cerebrovascular disorders especially inflammatory and neuroimmunological problems, neuroimaging and outcome, Cerebellar problems esp congenital and early onset ataxias, Developmental and cognitive problems in neurological disorders.  Paediatric Neuroophthalmology. Teaching and mentoring of Paediatric Neurology

Memberships: EPNS (board member since 2014), Swiss Society of Paediatric Neurology (president 2004-2010), Society of Paediatric Neurology  (president 2003-2007, BM 2007-2014), International Child Neurology Association, European Stroke Organisation, Swiss Stroke Organisation

Swiss Society of Paediatrics, Swiss Society of Paediatric Rehabilitation

Jurģis Strautmanis

BOARD MEMBER

MD, pediatric neurologist, Head of epilepsy and sleep medicine centre of University children’s clinical hospital, Riga, Latvia.

Training: Latvian medical academy, Medical faculty, pediatric section 1995-2001, physican; Riga Stradin’s university, Faculty of postgraduate education 2001-2005, pediatric neurologist.

Fields of clinical and research interest: Epilepsy, Sleep, Neuromuscular diseases.

Memberships: President of Latvian society of pediatric neurologists since 2016; President of Latvian league against epilepsy since 2016.

Federico Vigevano

BOARD MEMBER

Head of Neuroscience DPT – Bambino Gesù Children’s Hospital – Rome

Training:  – Postgraduate Diploma in Neurology and Psychiatry achieved in Rome; Training in Pediatric Epilepsy at Saint Paul Center of Marseilles in 1977; Since 1978 Pediatric neurologist at Children’s Hospital Bambino Gesù where he now holds the position of head of Neuroscience DPT.

Fields of clinical and research interest: Pediatric Epilepsy, Epileptic Encephalopathies, Drug-resistant Epilepsy, Genetic of Epilepsy, Video-EEG and Long-term monitoring in epilepsy, Coma in children, Sudden Infant Death Syndrome, Non epileptic paroxysmal manifestations, Movement Disorders, Neurosurgery, Ketogenic Diet, Cognitive Outcome. He identified a clinical entity that is currently recognized as a new syndrome called Benign Infantile Familial Seizures. He has published as first author or co-author more than 200 papers in the most important international journals dedicated prevalently to epilepsy and paediatric neurology.

Memberships: – President of the LICE ( Italian League Against Epilepsy) from 1999 to 2002;  Ambassador of Epilepsy since 2001; Member of several ILAE Commissions; President of the European Advisory Council of the ILAE 2001-2005. Referee of several scientific Journal dedicated to epilepsy and paediatric  neurology; He received the European Epileptology Award by the ILAE Commission on European Affairs (CEA). Prague, September 2016; He has been in the Scientific and/or Organizing Committee of the European Congress: Florence, Madrid, Vienna, Stockholm. Has been the Chair of the Scientific Committee of the International Congress on Epilepsy (Rome 2011). He is the organizer of the “International Course on Resistant Epilepsy” (Tagliacozzo – Italy); He participated as invited speaker at the most important international epilepsy and paediatric neurology congress.

Michael Albertus Adrianus Petrus Willemsen

TREASURER

Professor, Radboud university medical center, Amalia Children’s Hospital

Training:  Medical student & general training (1986-1993) and resident in pediatrics (5 yr), pediatric neurology (1 yr) and adult neurology (1 yr) (1993-1999) at Radboud university medical center; registration in January 2000 Appointed professor of pediatric neurology at Radboud University Nijmegen in Feb 2012. Head of  department of pediatric neurology since January 2008; acting head of the department of neurology from September 2013- June 2015. Head of Radboudumc Expert Centre for Genetic Movement Disorders since 2016.

Fields of clinical and research interest: pediatric movement disorders, neurometabolic and neurodegenerative disorders, especially Sjögren-Larsson syndrome, Ataxia Telangiectasia, GLUT1-deficiency syndrome, & neurotransmitter biosynthesis defects. Academic teaching including contributions to (inter)national courses & research focus on the same disorders. Pubmed (August 2017): 176 citations.

Memberships: Member of the board of the Dutch Society of Pediatric Neurology (until March 2017), EPNS, and ICNA. Ordinary member of many other (inter)national societies on pediatrics, neurology and inborn errors of metabolism; local and national committees on health issues linked to pediatrics and pediatric neurology; and scientific boards of international congresses. Member of the editorial boards of the European Journal of Pediatric Neurology, Neuropediatrics, and Developmental Medicine and Child Neurology.

Professor in Paediatrics, and Paediatric Neurologist at Hacettepe University Faculty of Medicine, Department of Paediatrics, Division of Neurology in Ankara, Turkey.

Training: MD degree at Ankara University Medical School in Ankara, Turkey

Postgraduate: Paediatric Residency and Paediatric Neurology Fellowship at Hacettepe University Children’s Hospital, Ankara, Turkey; Clinical Neurophysiology and Epilepsy Fellowship at Boston Children’s Hospital, Boston, MA

Fields of clinical research interest: Paediatric EEG and epilepsy, epilepsy surgery, neurometabolic/neurogenetic disorders

Memberships: International Child Neurology Asscociation, European Paediatric Neurology Society (member of CNA/TAB), American Epilepsy Society, Turkish Child Neurology Society (Elected Board Member 2012-2018), Turkish Clinical Neurophysiology EEG-EMG Society-Ankara Branch, Turkish Epilepsy Society, National (Turkish) Paediatrics Society

Dimitrios Zafeiriou

BOARD MEMBER

Professor of Child Neurology & Developmental Pediatrics Aristotle University of Thessaloniki and Guest Professor: Boston’s Children Hospital, Harvard University.

Training:  Pediatrics: Kinderzentrum Munich, Institute for Social Pediatrics and Adolescent Medicine, LMU University of Munich & Kinderpoliklinik, LMU University of Munich, Clinical Electroencephalography and Epileptology: Kinderklinik, Technical University of Munich, EMG/Neuromuscular Disorders: Friedrich-Baur-Institut, Poliklinik, LMU University of Munich, Neurology: Department of Neurology, 424th Military Hospital, Thessaloniki, Pediatric Neurology: Departments of Neurology and Neurophysiology, Great Ormond Street Hospital for Sick Children and Institute for Child Health, London.

Fields of clinical and research interest: Neurometabolic disorders, neonatal neurology & cerebral palsy, clinical neurophysiology (electroencephalography, evoked potentials, electromyography), pediatric epileptology, neuromuscular disorders, pediatric stroke, autism; >140 publications (Medline), mostly related to Neurogenetics and Neurometabolic Diseases.

Memberships: ICNA, American CNS, American Epilepsy Society, American EEG Society, American Academy of Clinical Neurophysiology, American Academy of Developmental Medicine and Child Neurology, EPNS, BPNA, German Child Neurology Society, German Society for Clinical Neurophysiology, Japanese Child Neurology Society, World Muscle Society, ESPR, SSIEM, founding Member of “Brains for Brain: European Task force on Brain and Neurodegenerative Lysosomal Storage Diseases”. 2001-2005: secretary, 2009-2011: Board Member & 2013-2015: President of the Greek Child Neurology Society, 2003-2007: official Greek representative at the CNA (EPNS), 2009-2015: founding Member and elected Vice President & 2015-2018 President of the Greek Society for the Study of Inborn Errors of Metabolism, 2014-2017: EPNS Board Member.

Linda de Meirleir (1954-2018)

It is with utmost sadness that I announce our much loved EPNS Board member, esteemed colleague and friend, Linda de Meirleir, passed away on the morning of 31 October 2018 after a brave battle with illness. There are few words to express the enormity of this loss. We are all deeply shocked and would like to offer our sincerest sympathy to Linda’s family, colleagues and friends. Linda made immense contributions to the EPNS and her legacy will live on. Her intellect, humour, thoughtfulness and caring spirit will be greatly missed.

Sameer Zuberi, EPNS President

With the kind blessing of Ingrid Tein, I share this beautifully written tribute https://icnapedia.org/s/linda