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Jean Aicardi

HONORARY MEMBER SINCE 2005 (DECEASED)

Born 1926, France
Undergraduate and postgraduate training
Faculté de Médecine de Paris, Hôpital des Enfants Malades, Hôpital Saint-Vincent de Paul, Paris and Harvard Medica School, Boston.
Present appointments – Affiliation
Honorary director of Research INSERM, France. Honorary professor of Child Neurology, Institute of Child Health London, UK
Major contributions to Paediatric Neurology
In several hundreds publications and a series of outstanding books Jean Aicardi has described the clinical signs and symptoms of various paediatric neurology diseases. These clinical descriptions and classifications have been seminal to further clinical and basic research in the field of paediatric neurology. “Diseases of the nervous system in childhood” has become the bible of paediatric neurology in every library. The critical attitude and the clarity of Jean Aicardi both in his writing as in his oral presentations have made him an inspirational and unique teacher in paediatric neurology.

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Eugen BOLTHAUSER

Honorary member since 2015

Born 6th Nov. 1945, Uznach, Switzerland

Undergraduate and postgraduate training

Eugen Boltshauser graduated in medicine at the University of Zürich, where he also had most of his training in paediatrics, paediatric neurology, and neurology. 2 year postgraduate training in London, The Hospital for Sick Children

Present appointments-Affiliation

Emeritus Professor of Paediatrc Neurology and former head of department of Neuropaediatrics, Children’s Hospital Zürich. Retired 2011.

Major contributions to Pediatric Neurology

Eugen Boltshauser developed a major interest in the cerebellum. He contributed many publications on specific cerebellar malformations (in particular Joubert syndrome), cerebellar disruptions, and neuroimaging aspects of the posterior fossa. He is Editor (with J. Schmahmann) of “Cerebellar Disorders in Children”. Other topics of interest were neurofibromatosis and and neuroimaging as a diagnostic tool. He was instrumental in introducing structured teaching to trainees in paediatric neurology in Switzerland and in the “academy” of the “Society for Neuropediatrics” (GNP).

Peter Georg Barth

HONORARY MEMBER SINCE 2009

Born 27th October 1937, Vienna, Austria
Undergraduate and postgraduate training
Medical Degree at University of Amsterdam, completed Paediatrics at Free University Hospital Amsterdam, including a year in adult neurology. Doctoral thesis on X-linked myotubular myopathy. Paediatric neurologist at Free University Hospital, Amsterdam until 1983, and at Emma Children’s Hospital, Academic Medical Centre, University of Amsterdam until retirement in 2002.
Present appointments – Affiliation
Chair in Paediatric Neurology (officially: Inherited and congenital disorders of the nervous system) at the University of Amsterdam. Retired in 2002, but still active in research on the topics that he started to study during his official career, in cooperation with the Departments of Paediatric Neurology and Neurogenetics at the University of Amsterdam.
Major contributions to Paediatric Neurology
Peter Barth started his career in paediatric neurology as paediatrician, and since then has worked to integrate the two roots of paediatric neurology into one organization, the Dutch Paediatric Neurology Society. During his career he worked part time as neuropathologist and much of his work bears the marks of this dual approach. Major contributions were the first complete report of the X-linked mitochondrial cardioskeletal myopathy and neutropenia, later to become known as Barth syndrome and clinical and neuropathological work on pontocerebellar hypoplasia, ultimately leading to the discovery of causative TSEN-gene mutations in 2008. Important observations through cohort studies were made on patients with the Zellweger spectrum. He wrote the first review on human neuronal migration disorders in 1987 and wrote the first paper on familial microlissencephaly. He pioneered the description of Infantile fibre type dysproportion and cardiomyopathy, and a new brain malformation: pontine tegmental cap dysplasia.

Paul Casaer

HONORARY MEMBER SINCE 2009

Born 22 Sep. 1940, Ekeren Antwerp, Belgium
Undergraduate and postgraduate training
Candidate degree faculty of medicine University of Leuven MD, faculty of medicine University of Leuven. Training in Paediatrics, Neurology, Paediatric Neurology and Rehabilitation in Leuven, Groningen (Netherland), Zurich Switzerland), PhD program and thesis Groningen.
Present appointments-Affiliation
Emeritus full Professor in Paediatrics-Paediatric Neurology. Honorary and founding director of the department of Paediatric Neurology, of the Developmental Neurology research unit and of the Paediatric Rehabilitation Centre Pulderbos. Honorary director of the Children’s Hospital of the University Hospital Leuven. Scientific advisor to the board of directors of the Marguerite Marie Delacroix foundation Brussels-Tienen (Belgium).
Major contributions to Pediatric Neurology
Training of 30 fellows in Paediatric Neurology from 15 countries. Secretary general for 4 years and president for 4 years of the ICNA-International Child Neurology Association 12 years board member of the EPNS-European Paediatric Neurology Society. 8 years president of EPNS. First elected president of the EPNS. Together with Victor Dubowitz founding editor of the EJPN journal. Research and publications, mainly related to perinatal and developmental neurology, to alternating hemiplegia and together with Jaak Jaeken the neurology of metabolic disorders.

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Victor Dubowitz

HONORARY MEMBER SINCE 2005

Born 1931, Beaufort West, South Africa
Undergraduate and postgraduate training
University of Cape Town, South Africa and the University of Sheffield, United Kingdom
Present appointments – Affiliation
Emeritus Professor of Paediatrics, University of London, Imperial College School of Medicine, Hammersmith Campus (Formerly Royal Postgraduate Medical School) Hammersmith Hospital, London. Victor Dubowitz married Lilly Dubowitz (Born Sebok). They have four sons and nine grandchildren.
Major contributions to Paediatric Neurology
Victor Dubowitz has made his major clinical and research contributions in the fields of neonatal neurology and neuromuscular disorders in children. Several hundred contributions related to these fields and other aspects of paediatric neurology and paediatrics have been published. They include a series of books written by Victor or by Victor and Lilly Dubowitz. The most classic contribution remains, in my view, the book “The Floppy Infant”. Victor Dubowitz has communicated his knowledge not only in written text but also in oral communications. There are only a few countries left in the world in which “the Dubowitz ‘s” have not given an invited or honorary lecture or contributed to seminars or workshops. Victor Dubowitz not only has excellent ideas but he also put them into practice: he did not just talk about the future of the European Federation of Paediatric Neurology Societies, he also became the first president of the new European Paediatric Neurology Society and the founding editor of the European Journal of Paediatric Neurology.

Ovar EEG-OLOFSSON

Honorary member since 2015

Born 3rd September 1932, Borås, Sweden

Undergraduate and postgraduate training

1959 M.D. University of Lund, Sweden
1970 Ph.D. University of Göteborg, Sweden . Thesis: The development of the electroencephalogram in normal children and adolescents from the age of 1 through 21 years.
1974 Assoc. professor and head of paediatric neurology, University of Linköping, Sweden.
Specialist competence in paediatrics, clinical neurophysiology, paediatric neurology.
1985 Professor, especially paediatric neurology, University of Kuwait, Kuwait.
1988 and chief physician, National Center for Epilepsy, Oslo, Norway.
1990 and head of paediatric neurology, University of Uppsala, Sweden.
1999-2012 and consultant paediatric neurologist, University Children’s Hospital, Uppsala, Sweden, north-eastern region of  Sweden, and  from 2006 the National Center for Epilepsy, Oslo,  Norway.
Visiting professor Montreal Neurological Institute 1982-1983 and periodically 1984-1985.

Present appointments – Affiliation

Senior professor, Children’s Hospital, University of Uppsala, Sweden

Major contributions to Paediatric Neurology

Supervisor for PhD students in Uppsala (3), and Oslo (1). Co-supervisor for PhD students in Göteborg(1), and Linköping (1).
Chairman Swedish  Neuropaediatric Association 1994-1996.
Board member EPNS 1997-2005.
Board member ICNA 1998-2014 (Treasurer 2002-2014).
Member of the ILAE task force group on classification 2000-2005.
Earlier member of the editorial board of EPNS, Journal of Child Neurology, and Pediatric neurology.
Main interests: epilepsy, general paediatric neurology, clinical neurophysiology, genetics, headache, neurometabolic disorders, neuromuscular disorders.
Author of more than 130 peer reviewed papers.

Yukio Fukuyama

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1928, Japan
Undergraduate and postgraduate training
University of Tokyo
Present appointments – Affiliation
Emeritus professor, Tokyo Women’s Medical University Director of the Child Neurology Institute, Tokyo.
Major contributions to Paediatric Neurology
Several hundred publications and a series of books have been published by professor Fukuyama, mainly in the field epilepsy and paediatric neuromuscular disorders. It is exceptionally rare for everybody to agree that one person has had such a major impact on enhancing international collaboration in the field of paediatric neurology. Yukio Fukuyama really has built a bridge between Japanese, Asian-Ocean and European Paediatric Neurology: He has not only opened up the European and American progress in paediatric neurology to Japan but he has also opened up paediatric neurology in Japan and the Asian-Oceanic region to Europe. Many of us have enjoyed the charming hospitality of Yukio and Mrs. Fukuyama between the books and journals in their house in Tokyo.

 

 

 

 

 

 

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Ilona GYÖRGY

Honorary member since 2015

Born 1938, Verpelét, Hungary

Undergraduate and postgraduate training

Received her Medical Degree at University of Debrecen.
Training in pediatrics, neurology and pediatric neurology at University Debrecen and at Semmelweis University , Budapest.
Doctoral thesis on neonatal neurology: Budapest

Present appointment – Affiliation

Retired but still active as honorary consultant and lecturer in the Pediatric Institute of the University of Debrecen

Major contributions to Paediatric Neurology

Dr György is a leading expert in Child Neurology and indeed was one of the first pediatric neurologist in Hungary. She co-founded the Hungarian Society of Child Neurology and served as its Secretery General for 12 years and as its President 7 years.

As a university professor, Dr György is also a teacher, who educated a great number of excellent doctors working as pediatric neurologists in Hungary and abroad. As member and later as president of the board of exams in Child Neurology, Dr György has created the curriculum of this post-gradual specialization in Hungary. She has published over a hundred papers, two books and numerous book chapters, mainly in Hungarian.Main interest: neonatal neurology and epilepsy.

For her work as a neurologist and a teacher, Dr György has received  numerous distinctions as the life-work award of Hungarian pediatricians, Schopf-Merei award in 2003.

Neil Gordon

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1918, Edinburgh, UK
Medical training
University of Edinburgh, Scotland
Graduate and postgraduate training
In paediatrics and paediatric neurology: Edinburgh ,London, San Francisco and London
Present appointment – Affiliation
Honorary consultant, paediatric neurologist, Children’s Hospital, Manchester.
Major contributions to Paediatric Neurology
Neil Gordon was particularly important in the establishment of Paediatric Neurology in Manchester and more generally in the UK. Neil Gordon has written several hundred contributions, many relating to cortical functioning and dysfunction, for example in childhood epilepsy, and to learning and behavioural disorders. Both during scientific and clinical meetings and in his correspondence with journals, and in his superb reviews, Neil Gordon has manifested his vast knowledge of the field of paediatric neurology. In his very gentle way, both in his oral communications and in his written comments, he has successfully put great energy into improving the quality of communicated facts and interpretations in the field of paediatric neurology. The detailed attention Neil Gordon gives to his correspondence is an example to all of us.

Bengt Hagberg

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1923, Göteborg, Sweden
Undergraduate and postgraduate training
Bengt Hagberg graduated in medicine in UppsalaUniversity ; where he also trained in paediatrics and paediatric neurology.
Present appointment – Affiliation
Emeritus professor of Paediatrics and Paediatric Neurology in Göteborg University. Bengt Hagberg married Gudrun, at that time a PhD student. Gudrun became the leading author in many of the Göteborg epidemiological studies and obtained a PhD h.c. of Göteborg University. Bengt and Gudrun have 5 children and 14 grandchildren.
Major contributions to Paediatric Neurology
Several hundreds of papers have been published related to the topics cerebral palsy, (e.g. “The changing panorama of cerebral palsy in Sweden”), learning difficulties, infantile hydrocephalus, polyneuropathies and other aspects of paediatrics and paediatric neurology. The careful clinical and epidemiological study of cerebral palsy allowed Bengt Hagberg to define a population of children with typical cerebral palsy and a population of children with atypical, obviously non-cerebral palsy types of developmental disorder. The study of the “non-cerebral palsy” children has been the start of a series of new diseases and disorders that were described by the Göteborg team. After the original publication by Rett, the first international publication on Rett syndrome was published by Hagberg in 1983 together with Jean Aicardi (Paris) and Karin Dias (Lisbon). This was the start of a still continuing flow of clinical and scientific progress on Rett syndrome. Bengt Hagberg built a Swedish network with P. Sourander (neuropathology), the late L. Svennerholm (neurochemistry) and A. Erlandsson (clinical genetics). The national collaboration was subsequently enlarged to an international collaboration or network with, for example Folker Hanefeld (Germany), Alan Percy (USA), O. Skiljedal (Norway) and Jean Aicardi (France).

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Gösta Mårten Killerman

HONORARY MEMBER SINCE 2009

Born Oct 2, 1941, Falun, Sweden
Undergraduate and postgraduate training
Undergraduate at Uppsala University and postgraduate at Göteborg University, Sweden.
Thesis on Dyskinetic CP 1972 and Teacher in Paediatrics 1973 at Sahlgrenska Hospital, Göteborg University.
Present appointments & Affiliation
Former Head of Child Neurology at the Children?s Hospital, Göteborg and Professor of Paediatrics. Retired in 2009.
Major contributions to Paediatric Neurology
Cerebral Palsy: aetiology, neurological profile, neuropathology.
Movement Disorders: Glutaric aciduria type I, Myoclonic Dystonia, DYT 11, clinical and genetic studies. Muscle disorders: X-linked myotubular myopaty, inclusion body myositis, dysimmune neuropathy CIDP. Epilepsy: Studies on epilepsy and mental retardation, progressive myoclonus epilepsy (Unverricht-Lundborg disease). Mental Retardation: Clinical and molecular genetic studies on male/female Rett syndrome, Angelman syndome and Angelman-like syndrome. Textbook chapters on examination/investigations in paediatric neurology, mental retardation in paediatrics, neurodificit syndromes in paediatrics, paediatric neurology, Angelman syndrome (both Swedish and English texts).

Gilles Lyon

HONORARY MEMBER SINCE 2005  (DECEASED)

Born 1921, Mulhouse, France
Undergraduate and postgraduate training
Gilles Lyon’s medical studies started in 1941 at the Medical School of the University of Paris; but were interrupted between 1943 and 1945, while he was a member of the Free French Forces in Great Britain. Training in paediatrics and neurology in La Salpétrière, Les Enfants Malades, Paris. Clinical and neuropathological training (Ray Adams and Phil Dodge), Massachussetts General Hospital Boston.
Present appointments – Affiliation
Emeritus professor, Faculty of Medicine and Cliniques Universitaires Saint-Luc (UCL), Brussels, Belgium Professor in Neurology, New York University Medical School.
Major contributions to Paediatric Neurology
Gilles Lyon worked mainly in Paris and in Brussels. He is an excellent clinician but on top of that he has a vast experience in neuropathology and in developmental neuropathology. As a result of this unique combination of skills, he was the first to make several observations in paediatric neurology: “The free interval in congenital hemiplegia”, the role of circulatory disturbances in the development of periventricular leukomalacia. He also described, together with Philippe Evrard and Verne Caviness a series of migration disorders. He also stressed the importance of neurovirology in developmental neuropathology. Gilles Lyon wrote, together with Raymond Adams and Edwin Kolodny, a magnificent book “Neurology of Hereditary Metabolic Diseases in Children”, on the rapid expanding field of neurodegenerative and neurometabolic disorders. In Europe generally, and perhaps especially in France and Belgium, we are very grateful for his contributions as a scientist and as a teacher in paediatric neurology.

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Sanda Magureanu

HONORARY MEMBER SINCE 2009

Born: April 16th, 1938, Sibiu, Romania
Undergraduate and postgraduate training
Training in paediatrics, paediatric neurology and child psychiatry, postdoctoral fellowship in Paris, Marseille, France 1970, 1993, 1995, 1997 (under the supervision of Prof J. Aicardi, O. Dulac, M. Tardieu).
Present appointments – Affiliation
Honorary consultant, Professor of paediatric neurology, honorary member of Romanian Academy of Medical Sciences, member of scientific board of different Romanian journals, member of EPNS, EACD, ICNA, EUREPA, ILAE, Romanian Neurology Society, European Neurology Society, French League Against Epilepsy.
Major contributions to Paediatric Neurology
Sanda Magureanu is probably the most widely known paediatric neurologist in Romania. She is the creator of modern paediatric neurology in Romania as a physician, a teacher, a publisher, a researcher and also the creator of the legal frame for paediatric neurology development. Many paediatric neurologists consider her their mentor and friend. The book “Neuromuscular disorders of childhood” is an excellent reference in the field of muscular pathology for all neurologists. Her activity in childhood epilepsy field was the leading point for developing this area through the entire country.

Brian George Richard Neville

MEMBER SINCE 2009  (DECEASED)

Born February 13, 1939
Undergraduate and postgraduate training
Consultant Paediatric Neurologist and Director of the Newcomen Child Development Centre, Guy’s Hospital
Present appointments / affiliation
Emeritus Professor of Childhood Epilepsy UCL-ICH /National Centre for Young People with Epilepsy
Previous appointments
The Prince of Wales’s Professor of Childhood Epilepsy (2004-2008)
Professor of Paediatric Neurology UCL-ICH/Great Ormond Street Hospital and The National Centre for Young People with Epilepsy (1989-2004).
Major contributions to Paediatric Neurology
Founder of European Academy of Childhood Disability and Co-founder of European Society for Movement Analysis in children. Previously Secretary and President of the British Paediatric Neurology Association. Previously training coordinator for EPNS, BPNA and North London. Main interests; epilepsy, disability and cognitive and psychiatric aspects of developmental neurology. Author of more than 200 peer reviewed papers.

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John B P STEPHENSON

Honorary member since 2015

Born 25th January 1935, Edinburgh, Scotland, UK

Undergraduate and postgraduate training

Balliol College, Oxford (BA Hons. Animal physiology; MA, BM, DM Oxon);
St Thomas’s Hospital Medical School, London (Hadden Prize: “Autoimmunity”);
Royal Hospital for Sick Children, Glasgow (Paediatrics, Paediatric Neurology); Hospital for Sick Children, Toronto (Neurosurgery, Neurology and EEG)

 

Awards

Honorary Fellowship, Royal College of Paediatrics and Child Health
Lifetime Achievement Award for Excellence in Paediatric Epilepsy. International League against Epilepsy, British Chapter. URL: http://www.recording-microphones.co.uk/ilae.htm

Present appointment – Affiliation

Honorary Professor in Paediatric Neurology, University of Glasgow;
Consultant Paediatric Neurologist Emeritus, Fraser of Allander Neurosciences Unit, Royal Hospital for Sick Children, Glasgow.

Franz J Schulte

HONORARY MEMBER SINCE 2005

Born 1930, Hagen, Germany
Undergraduate and postgraduate training
Franz Schulte went to the Medical School at the Universities of Münster, Marburg, München and Düsseldorf; in Düsseldorf he graduated with a Doctoral Thesis. He simultaneously also completed a full training in neurophysiology at the Neurophysiological Institute of the University of Göttingen (Kurt Kramer). During that period, he visited Ragnar Granit in the Nobel Institute in Stockholm. In that period Franz Schulte published a series of neurophysiological basic science papers. Franz Schulte married Frauke; they have 2 children and 4 grandchildren.
Present appointment – Affiliation
Professor Schulte is Emeritus professor and Chairman of the Department of Paediatrics at the University of Medicine in Hamburg. He also was the student Dean of the Faculty of Medicine in Hamburg for many years.
Major contributions to Paediatric Neurology
Franz Schulte was one of the first paediatric neurologists with a double training and career – in both clinical medicine and basic research. During his combined training Franz Schulte visited, for relatively short periods, several centres where new information allowed further development of understanding in paediatric neurology: these included collaboration with Alexander Minkowski and Colette Dreyfus-Brisac in Paris, Peter Tizard in London and Heinz Prechtl in Groningen. Franz Schulte stayed for a longer period with A.H. Parmelee in Los Angeles. In 1968, he published, together with Gerhard Joppich, the very first monograph on clinical neonatal neurology “Neurologie des Neugeborenen” and the following year he founded, together with K.A. Bushe, the first Journal of Paediatric Neurology in Germany “Neuropädiatrie”, that later became an international journal “Neuropediatrics”. Taking advantage of the co-location in Hamburg, of paediatrics and oncology, Franz Schulte broadened his neuropaediatric interest by developing together with the neurosurgeons an innovative paediatric neuro-oncology unit.

Marc TARDIEU

Honorary member since 2015

Born 30th September 1949, Paris, France.

Undergraduate and postgraduate training

Undergraduate training at University Paris-Sud, Faculty of medicine and at Institut National de la Santé et de la Recherche medicale (INSERM).
Graduate study: successively : Hôpitaux de Paris (Internship, including training with Pr Alagille, Royer and Lapresle (adult neurology) and Hirsch (Neurosurgery)), Université Catholique de Louvain, Cliniques Universitaires St Luc (Pr Lyon and Pr Evrard), Harvard University (post-doctoral research fellow, Pr Weiner), Université Paris Sud (Pr Landrieu).

Present appointment – Affiliation

I am presently appointed by Université Paris Sud as professeur de Classe exceptionnelle (highest level) in Pediatric (neurology), in progressive retirement. I am or was part of: the International Pediatric MS study group steering committee and chair of clinical trials task force ; the International opsoclonus-myoclonus syndrome study group (presently chair). I am on editorial board of Multiple sclerosis Journal and European Journal of paediatric Neurology.
In the recent past, I was the head of pediatric neurology (Hôpitaux universitaires Paris Sud), head of Inserm Unit 1012 and head of Institut federatif de recherche Bicêtre. I was part of the board of EPNS at its onset for four years and came back to it again for a new four years term later on.

Major contributions to Paediatric Neurology

I wrote 315 articles (best as first or last author in Science, N. Engl J Med, Ann Neurol, Neurology, Brain, Lancet, Lancet Neurol, Blood, Pediatrics, Eur J Paediatr Neurol), and 40 book chapters.
My main contributions were in neuroimmunology and viral diseases of the brain. My major papers were in the fields of HIV infection of the brain of children, encephalitis in general, herpes encephalitis, multiple sclerosis, Lymphohistiocytosis, ADEM and more recently intra-cerebral gene therapy in SanFilippo disease.