EPNS - European Paediatric Neurology Society

	Jean AICARDI Born 1926, France Undergraduate and postgraduate training Faculté de Médecine de Paris, Hôpital des Enfants Malades, Hôpital Saint-Vincent de Paul, Paris and Harvard Medica School, Boston. Present appointments - Affiliation Honorary director of Research INSERM, France. Honorary professor of Child Neurology, Institute of Child Health London, UK Major contributions to Paediatric Neurology In several hundreds publications and a series of outstanding books Jean Aicardi has described the clinical signs and symptoms of various paediatric neurology diseases. These clinical descriptions and classifications have been seminal to further clinical and basic research in the field of paediatric neurology. "Diseases of the nervous system in childhood" has become the bible of paediatric neurology in every library. The critical attitude and the clarity of Jean Aicardi both in his writing as in his oral presentations have made him an inspirational and unique teacher in paediatric neurology. Honorary member since 2005
	Peter Georg BARTH Born 27^th October 1937, Vienna, Austria Undergraduate and postgraduate training Medical Degree at University of Amsterdam, Completed Pediatrics at Free University Hospital Amsterdam, including a year in adult neurology. Doctoral thesis on X-linked myotubular myopathy. Pediatric neurologist at Free University Hospital, Amsterdam until 1983, and at Emma Children 's Hospital, Academic Medical Centre, University of Amsterdam until retirement in 2002. Present appointments – Affiliation Chair in Pediatric Neurology (officially: Inherited and congenital disorders of the nervous system) at the University of Amsterdam. Retired in 2002, but still active in research on the topics that he started to study during his official career, in cooperation with the Departments of Pediatric Neurology and Neurogenetics at the University of Amsterdam. Major contributions to Paediatric Neurology Peter Barth started his career in pediatric neurology as pediatrician, and since then has worked to integrate the two roots of pediatric neurology into one organization, the Dutch Pediatric Neurology Society. During his career he worked part time as neuropathologist and much of his work bears the marks of this dual approach. Major contributions were the first complete report of the X-linked mitochondrial cardioskeletal myopathy and neutropenia, later to become known as Barth syndrome and clinical and neuropathological work on pontocerebellar hypoplasia, ultimately leading to the discovery of causative TSEN-gene mutations in 2008. Important observations through cohort studies were made on patients with the Zellweger spectrum. He wrote the first review on human neuronal migration disorders in 1987 and wrote the first paper on familial microlissencephaly. He pioneered the description of Infantile fibre type dysproportion and cardiomyopathy, and a new brain malformation: pontine tegmental cap dysplasia. Honorary member since 2009
	Paul CASAER Born 22 Sep. 1940, Ekeren Antwerp, Belgium Undergraduate and postgraduate training Candidate degree faculty of medicine University of Leuven MD, faculty of medicine University of Leuven. Training in Pediatrics, Neurology, Pediatric Neurology and Rehabilitation in Leuven, Groningen (Netherland), Zurich Switzerland), PhD program and thesis Groningen. Present appointments-Affiliation Emeritus full Professor in Pediatrics-Pediatric Neurology. Honorary and founding director of the department of Pediatric Neurology, of the Developmental Neurology research unit and of the Pediatric Rehabilitation Center Pulderbos. Honorary director of the Children’s Hospital of the University Hospital Leuven. Scientific advisor to the board of directors of the Marguerite Marie Delacroix foundation Brussels-Tienen (Belgium). Major contributions to Pediatric Neurology Training of 30 fellows in Pediatric Neurology from 15 countries. Secretary general for 4 years and president for 4 years of the ICNA-International Child Neurology Association 12 years board member of the EPNS-European Pediatric Neurology Society. 8 years president of EPNS. First elected president of the EPNS. Together with Victor Dubowitz founding editor of the EJPN journal. Research and publications, mainly related to perinatal and developmental neurology, to alternating hemiplegia and together with Jaak Jaeken the neurology of metabolic disorders Honorary member since 2009
	Victor DUBOWITZ Born 1931, Beaufort West, South Africa Undergraduate and postgraduate training University of Cape Town , South Africa and the University of Sheffield, United Kingdom Present appointments - Affiliation Emeritus Professor of Paediatrics, University of London, Imperial College School of Medicine, Hammersmith Campus (Formerly Royal Postgraduate Medical School) Hammersmith Hospital, London. Victor Dubowitz married Lilly Dubowitz (Born Sebok). They have four sons and nine grandchildren. Major contributions to Paediatric Neurology Victor Dubowitz has made his major clinical and research contributions in the fields of neonatal neurology and neuromuscular disorders in children. Several hundred contributions related to these fields and other aspects of paediatric neurology and paediatrics have been published. They include a series of books written by Victor or by Victor and Lilly Dubowitz. The most classic contribution remains, in my view, the book "The Floppy Infant". Victor Dubowitz has communicated his knowledge not only in written text but also in oral communications. There are only a few countries left in the world in which "the Dubowitz 's" have not given an invited or honorary lecture or contributed to seminars or workshops. Victor Dubowitz not only has excellent ideas but he also put them into practice: he did not just talk about the future of the European Federation of Paediatric Neurology Societies, he also became the first president of the new European Paediatric Neurology Society and the founding editor of the European Journal of Paediatric Neurology. Honorary member since 2005
	Philippe EVRARD Honorary member since 2009
	Yukio FUKUYAMA Born 1928, Japan Undergraduate and postgraduate training University of Tokyo Present appointments - Affiliation Emeritus professor, Tokyo Women 's Medical University Director of the Child Neurology Institute, Tokyo. Major contributions to Paediatric Neurology Several hundred publications and a series of books have been published by professor Fukuyama, mainly in the field epileptology and paediatric neuromuscular disorders. It is exceptionally rare for everybody to agree that one person has had such a major impact on enhancing international collaboration in the field of paediatric neurology. Yukio Fukuyama really has built a bridge between Japanese, Asian-Ocean and European Paediatric Neurology: He has not only opened up the European and American progress in paediatric neurology to Japan but he has also opened up paediatric neurology in Japan and the Asian-Oceanic region to Europe. Many of us have enjoyed the charming hospitality of Yukio and Mrs. Fukuyama between the books and journals in their house in Tokyo. Honorary member since 2005
	Neil GORDON Born 1918, Edinburgh, UK Medical training University of Edinburgh, Scotland Graduate and postgraduate training In paediatrics and paediatric neurology: Edinburgh ,London, San Francisco and London Present appointment - Affiliation Honorary consultant, paediatric neurologist, Children 's Hospital, Manchester. Major contributions to Paediatric Neurology Neil Gordon was particularly important in the establishment of Paediatric Neurology in Manchester and more generally in the UK. Neil Gordon has written several hundred contributions, many relating to cortical functioning and dysfunction, for example in childhood epilepsy, and to learning and behavioural disorders. Both during scientific and clinical meetings and in his correspondence with journals, and in his superb reviews, Neil Gordon has manifested his vast knowledge of the field of paediatric neurology. In his very gentle way, both in his oral communications and in his written comments, he has successfully put great energy into improving the quality of communicated facts and interpretations in the field of paediatric neurology. The detailed attention Neil Gordon gives to his correspondence is an example to all of us. Honorary member since 2005
	Bengt HAGBERG Born 1923, Göteborg, Sweden Undergraduate and postgraduate training Bengt Hagberg graduated in medicine in UppsalaUniversity ; where he also trained in paediatrics and paediatric neurology. Present appointment - Affiliation Emeritus professor of Paediatrics and Paediatric Neurology in Göteborg university. Bengt Hagberg married Gudrun, at that time a PhD student. Gudrun became the leading author in many of the Göteborg epidemiological studies and obtained a PhD h.c. of Göteborg University. Bengt and Gudrun have 5 children and 14 grandchildren. Major contributions to Paediatric Neurology Several hundreds of papers have been published related to the topics cerebral palsy, (e.g. "The changing panorama of cerebral palsy in Sweden"), learning difficulties, infantile hydrocephalus, polyneuropathies and other aspects of paediatrics and paediatric neurology. The careful clinical and epidemiological study of cerebral palsy allowed Bengt Hagberg to define a population of children with typical cerebral palsy and a population of children with atypical, obviously non-cerebral palsy types of developmental disorder. The study of the "non-cerebral palsy" children has been the start of a series of new diseases and disorders that were described by the Göteborg team. After the original publication by Rett, the first international publication on Rett syndrome was published by Hagberg in 1983 together with Jean Aicardi (Paris) and Karin Dias (Lisbon). This was the start of a still continuing flow of clinical and scientific progress on Rett syndrome. Bengt Hagberg built a Swedish network with P. Sourander (neuropathology), the late L. Svennerholm (neurochemistry) and A. Erlandsson (clinical genetics). The national collaboration was subsequently enlarged to an international collaboration or network with, for example Folker Hanefeld (Germany), Alan Percy (USA), O. Skiljedal (Norway) and Jean Aicardi (France). Honorary member since 2005
	Folker HANEFELD Honorary member since 2009
	Gösta Mårten KYLLERMAN Born Oct 2, 1941, Falun, Sweden Undergraduate and postgraduate training: Undergraduate at Uppsala University and postgraduate at G?teborg University, Sweden. Thesis on Dyskinetic CP 1972 and Teacher in Paediatrics 1973 at Sahlgrenska Hospital, G?teborg University. Present appointments ? Affiliation: Former Head of Child Neurology at the Children?s Hospital, G?teborg and Professor of Paediatrics. Retired in 2009. Major contributions to Paediatric Neurology: Cerebral Palsy: etiology, neurological profile, neuropathology. Movement Disorders: Glutaric aciduria type I, Myoclonic Dystonia, DYT 11, clinical and genetic studies. Muscle disorders: X-linked myotubular myopaty, inclusion body myositis, dysimmune neuropathy CIDP. Epilepsy: Studies on epilepsy and mental retardation, progressive myoclonus epilepsy (Unverricht-Lundborg disease). Mental Retardation: Clinical and molecular genetic studies on male/female Rett syndrome, Angelman syndome and Angelman-like syndrome. Textbook chapters on xamination/investigations in paediatric neurology, mental retardation in paediatrics, neurodificit syndromes in paediatrics, paediatric neurology, Angelman syndrome (both Swedish and English texts). Honorary member since 2009
	Gilles LYON Born 1921, Mulhouse, France Undergraduate and postgraduate training Gilles Lyon 's medical studies started in 1941 at the Medical School of the University of Paris; but were interrupted between 1943 and 1945, while he was a member of the Free French Forces in Great Britain. Training in paediatrics and neurology in La Salpétrière, Les Enfants Malades, Paris. Clinical and neuropathological training (Ray Adams and Phil Dodge), Massachussetts General Hospital Boston. Present appointments - Affiliation Emeritus professor, Faculty of Medicine and Cliniques Universitaires Saint-Luc (UCL), Brussels, Belgium Professor in Neurology, New York University Medical School. Major contributions to Paediatric Neurology Gilles Lyon worked mainly in Paris and in Brussels. He is an excellent clinician but on top of that he has a vast experience in neuropathology and in developmental neuropathology. As a result of this unique combination of skills, he was the first to make several observations in paediatric neurology: "The free interval in congenital hemiplegia", the role of circulatory disturbances in the development of periventricular leukomalacia. He also described, together with Philippe Evrard and Verne Caviness a series of migration disorders. He also stressed the importance of neurovirology in developmental neuropathology. Gilles Lyon wrote, together with Raymond Adams and Edwin Kolodny, a magnificent book "Neurology of Hereditary Metabolic Diseases in Children", on the rapid expanding field of neurodegenerative and neurometabolic disorders. In Europe generally, and perhaps especially in France and Belgium, we are very grateful for his contributions as a scientist and as a teacher in paediatric neurology. Honorary member since 2005
	Sanda MAGUREANU Born: April 16^th, 1938, Sibiu, Romania Undergraduate and postgraduate training Training in pediatrics, pediatric neurology and child psychiatry, postdoctoral fellowship in Paris, Marseille, France 1970, 1993, 1995, 1997 (under the supervision of Prof J. Aicardi, O . Dulac, M. Tardieu). Present appointments – Affiliation Honorary consultant, Professor of pediatric neurology, honorary member of Romanian Academy of Medical Sciences, member of scientific board of different Romanian journals, member of EPNS, EACD, ICNA, EUREPA, ILAE, Romanian Neurology Society, European Neurology Society, French League Against Epilepsy. Major contributions to Paediatric Neurology Sanda Magureanu is probably the most widely known pediatric neurologist in Romania. She is the creator of modern pediatric neurology in Romania as a physician, a teacher, a publisher, a researcher and also the creator of the legal frame for pediatric neurology development. Many pediatric neurologists consider her their mentor and friend. The book “Neuromuscular disorders of childhood” is an excellent reference in the field of muscular pathology for all neurologists. Her activity in childhood epilepsy field was the leading point for developing this area through the entire country. Honorary member since 2009
	Brian NEVILLE Honorary member since 2009
	Franz J SCHULTE Born 1930, Hagen, Germany Undergraduate and postgraduate training Franz Schulte went to the Medical School at the Universities of Münster, Marburg, München and Düsseldorf; in Düsseldorf he graduated with a Doctoral Thesis. He simultaneously also completed a full training in neurophysiology at the Neurophysiological Institute of the University of Göttingen (Kurt Kramer). During that period, he visited Ragnar Granit in the Nobel Institute in Stockholm. In that period Franz Schulte published a series of neurophysiological basic science papers. Franz Schulte married Frauke; they have 2 children and 4 grandchildren. Present appointment - Affiliation Professor Schulte is Emeritus professor and Chairman of the Department of Paediatrics at the University of Medicine in Hamburg. He also was the student Dean of the Faculty of Medicine in Hamburg for many years. Major contributions to Paediatric Neurology Franz Schulte was one of the first paediatric neurologists with a double training and career - in both clinical medicine and basic research. During his combined training Franz Schulte visited, for relatively short periods, several centres where new information allowed further development of understanding in paediatric neurology: these included collaboration with Alexander Minkowski and Colette Dreyfus-Brisac in Paris, Peter Tizard in London and Heinz Prechtl in Groningen. Franz Schulte stayed for a longer period with A.H. Parmelee in Los Angeles. In 1968, he published, together with Gerhard Joppich, the very first monograph on clinical neonatal neurology "Neurologie des Neugeborenen" and the following year he founded, together with K.A. Bushe, the first Journal of Paediatric Neurology in Germany "Neuropädiatrie", that later became an international journal "Neuropediatrics". Taking advantage of the co-location in Hamburg, of paediatrics and oncology, Franz Schulte broadened his neuropaediatric interest by developing together with the neurosurgeons an innovative paediatric neuro-oncology unit. Honorary member since 2005